Community Resources

Updated April 8, 2023

Please feel free to send me your information to celebratingallabilities@gmail.com
If it’s appropriate, I’ll be happy to include. Please be advised that I usually give preference to national and Virginia-based non-profit organizations.

_________________Disclaimer
For information purposes only. Inclusion in this document does not imply endorsement.

TABLE OF CONTENTS

GENERAL RESOURCES

ADVOCACY AND GENERAL INFORMATION
ASSISTIVE TECHNOLOGY
CHILD CARE
COMMUNITY SERVICE ORGANIZATIONS
EARLY INTERVENTION/EARLY CHILDHOOD/PRESCHOOL
EDUCATIONAL RESOURCES
EMERGENCY PREPAREDNESS
FINANCIAL AND LIFE PLANNING
HEALTH/MEDICAL
LEGAL
MISCELLANEOUS GROUPS/SERVICES
PARATRANSIT
RECREATION
RESPITE
SCHOOLS
SERVICE AND THERAPY ANIMALS
TRANSITION/ADULTHOOD
TRAVELING

CONDITION-SPECIFIC RESOURCES

ASTHMA AND ALLERGIES

Allergy & Asthma Network
Nonprofit organization whose mission is to end the needless death and suffering due to asthma, allergies and related conditions through outreach, education, advocacy and research.
Vienna • 800-878-4403
www.allergyasthmanetwork.org

Allergy Home
Provides practical teaching tools to those who care for children with food allergies.
www.allergyhome.org

American Academy of Allergy, Asthma & Immunology
Provides information for parents and professionals including a referral source for allergists in Virginia.
414-272-6071
www.aaaai.org

American Lung Association
Volunteer health organization working to save lives, improve lung health and prevent lung disease. Special interests include asthma, tobacco control, and environmental health.
1-800-LUNGUSA
www.lung.org

Asthma and Allergy Foundation of America
Provides practical information, community-based services, support and referrals through a national network of chapters.
800-7-ASTHMA.
www.aafa.org

Center for Food Safety and Applied Nutrition
A program of the Food and Drug Administration that words to protect the public’s health by ensuring that the nation’s food supply is safe, sanitary, wholesome, and honestly labeled, and that cosmetic products are safe and properly labeled.
888-723-3366
www.fda.gov/Food/default.htm

Food Allergy & Anaphylaxis Network
Dedicated to increasing public awareness of, providing education about, and advancing scientific research on, food allergies and anaphylaxis. Sign up for “allergy alerts” which are mailed to you when an allergen is found in food and not listed in the ingredients. Can also find support groups on this site as well as currently available patient resources that may help reduce out-of-pocket cost for epinephrine.
National Headquarters: McLean • 703-691-3179 • 800-929-4040
www.foodallergy.org

Kids With Food Allergies Foundation
Mission is to help families keep children with food allergies safe and healthy including through an online forum community.
community.kidswithfoodallergies.org

Tree Pollen and Other Common Allergies
A page from American Academy of Allergy, Asthma & Immunology site provides useful information about allergies resulting from tree pollen, dust mites, mold and animal dander.
www.treeremoval.com/tree-pollen-and-other-common-allergies
* Thanks to Susan and Mary Lowe for sending this information!

AUDITORY PROCESSING DISORDER

American Speech-Language Hearing Association
Works to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate effectively. Search on this site for Understanding Auditory Processing Disorders
800-638-8255
www.asha.org

National Coalition of Auditory Processing Disorders
Website with information about Auditory Processsing Disorder (APD), a neurological defect that affects how the brain processes spoken language. This makes it difficult for the child to process verbal instructions or even to filter out background noise in the classroom.
www.ncapd.org

The National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. Search for service providers on this site.
800-241-1044 • 800-241-1055 TTY
www.nidcd.nih.gov

AUTISM SPECTRUM

Autism Key
A resource tool, run by parents, for parents of children with autism and autism spectrum disorders. Message Boards share information about different forms of treatment, physicians, and overall experiences. Links to national resources.
www.autismkey.com

The Autism Research Institute (ARI)
Desseminates research findings to parents and others worldwide who are seeking help. The ARI data bank contains over 40,000 detailed case histories from over 60 countries. Website has many links to support and resources.
www.autism.com

AutismSafety.org
Portion of the National Autism website devoted to safety issues for children with autism.
https://www.autismspeaks.org/autism-safety-project

Autism Speaks
Dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
www.autismspeaks.org

Autism Society of America
Promotes lifelong access and opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities.
800-3AUTISM
Central Virginia Chapter • Richmond • 804-257-0192 • www.asacv.org
Northern Virginia Chapter • 703-495-8444 • www.asanv.org
Tidewater Chapter • Norfolk • 757-461-4474 https://www.tidewaterasa.org
www.Autism-Society.org

Commonwealth Autism Service (now known as CA)
Provides leadership in the implementation of a statewide system of services to maximize the potential and quality of life for Virginians with autism in partnership with the lead state agency for autism, the Department of Behavioral Health and Developmental Services (DBHDS).
800-649-8481
https://cahumanservices.org

The Mea’Alofa Autism Support Center
Provides quality and empirically validated services to children with autism spectrum disorders (ASD) in a clinical setting.
Chesapeake • 757-465-3933
learnwithmasc.org

National Autism Association
Education, advocacy, awareness and support.
877-622-2884
www.nationalautismassociation.org

Organization for Autism Research
Provides support and funds studies that provide practical information on lifelong care.
866-366-9710
www.researchautism.org

Parents Of Autistic Children
Mission is to improve the lives of children and adults with autism by providing scientifically-based training to parents, teachers, and other direct service providers.
www.poac.net

Parents Of Autistic Children of Northern Virginia
Works to improve the quality and quantity of education for students with autism in Northern Virginia.By meeting regularly with the decision makers in Northern Virginia school districts, POAC-NoVA strives to keep our members’ concerns front and center. We have developed relationships that allow our members to not only have their concerns heard, but acted upon. Also holds a monthly parent support group and information meeting.
Springfield • 703-249-5099
www.poac-nova.org

Reaching Potentials
A variety of services focusing on: Learning Readiness, Building speech and language skills, Building/Strengthening academic readiness (e.g. reading, writing and math skills), Encouraging social and emotional development (e.g. supporting more appropriate play and social skills), and Addressing age appropriate daily living skills (e.g. grooming, toileting and dressing) Site is currently disabled (4/8/23)
Fredericksburg • 540-368-8087
www.reachingpotentials.org

Sesame Street and Autism: See Amazing in All Children
A nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. At the same time, the project fosters an affirming narrative around autism for all families and kids.
autism.sesamestreet.org

Social Beginnings
Offers Social Thinking® based therapy groups and summer camps for children ages 4-18. Rather than teaching the social skills, we teach the “why” behind the skill which helps motivate children to self-assess and self-monitor their social behaviors in generalized settings. Groups are lead by Licensed Behavior Analysts and can be covered by insurance.
Locations throughout Maryland and Northern Virginia
888-344-5977 Ext. 5
www.verbalbeginnings.com

US Autism and Asperger Association
Provides education, research, support and solutions through conferences, newsletters, and resources.
888-9AUTISM
www.usautism.org

Verbal Beginnings
By utilizing the principles of ABA, Verbal Beginnings unlocks children’s potential. With individualized teaching procedures in place, clinicians make lasting progress in each child’s and family’s life.
Service areas include Virginia
www.verbalbeginnings.com

Virginia Autism Council
A state-supported council of autism experts seeking to define needed skill competencies, and to advance higher education, training and educational opportunities for personnel and caregivers supporting individuals with autism.
804-827-0108
www.autismtrainingva.org

BLIND, VISUAL IMPAIRMENT

American Council of the Blind
Information and referrals, including legal rights for blind and visually impaired persons. Literature includes the “Braille Forum,” topical brochures in large print and catalogs of useful products.
800-424-8666 • 202-467-5081
www.acb.org

American Foundation for the Blind
Promotes wide-ranging, systemic change by addressing the most critical issues facing the growing blind and visually impaired population— employment, independent living, literacy, and technology.
www.afb.org

Association for the Education & Rehabilitation of the Blind & Visually Impaired (AER)
Support professionals who provide education and rehabilitation services to people with visual impairments, offering professional development opportunities, publications, and public advocacy.
703-671-4500
www.aerbvi.org

Columbia Lighthouse for the Blind
Programs and services include early intervention services, training and consultation in assistive technology, career placement services, comprehensive low vision care and rehabilitation services.
202-454-6400
www.clb.org

Foundation Fighting Blindness
Provides information and referral services for affected individuals, families and eye care professionals.
800-683-5555 • 800-683-5551 TDD
Hampton Roads/Virginia Beach Chapter • virginiabeach@fightingblindness.org
www.blindness.org

Learning Ally
Promotes personal achievement when access and reading are barriers to learning by advancing the use of accessible and effective educational solutions; helping blind, visually impaired & dyslexic students to thrive; offers the world’s largest collection of human-narrated audio textbooks and literature as well as solutions, support and community for parents, teachers and students.
800-221-4792
www.learningally.org

Lighthouse Guild
Leading not-for-profit vision + healthcare organization, with a long-standing heritage of addressing the needs of people who are blind or visually impaired, including those with multiple disabilities or chronic medical conditions. Through the integration of vision + healthcare services and the expansion of access through education and community outreach, our innovative and comprehensive approach helps people achieve and maintain the highest possible level of function and independence.
800-284-4422
www.lighthouseguild.org

National Braille Press
Promotes the literacy of blind children through braille and provides access to information that empowers blind people to actively engage in work, family, and community affairs.
888-965-8965
www.nbp.org

National Federation of the Blind, Virginia
Provides advocacy, community education and awareness, and mutual support for the blind. Home page indicates 15 chapters, including Fairfax chapter and at-large chapter.
www.nfbv.org

National Eye Institute
As part of the federal government’s National Institutes of Health (NIH), the National Eye Institute’s mission is to conduct and support research, training, health information dissemination, and other programs with respect to blinding eye diseases, visual disorders, mechanisms of visual function, preservation of sight, and the special health problems and requirements of the blind.
nei.nih.gov

National Library Service for the Blind and Print Disabled
NLS is a free braille and talking book library service for people with temporary or permanent low vision, blindness, or a physical disability that prevents them from reading or holding the printed page. Through a national network of cooperating libraries, NLS offers books the way you want them: in braille or audio, mailed to your door for free or instantly downloadable. Search site to find a participating library near you.
www.loc.gov/nls/

National Organization of Parents of Blind Children
National membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information. A division of the National Federation of the Blind, they have over 3,000 members in all 50 states and divisions and parent contacts in about 30 states plus Puerto Rico.
Virginia Contact • (540) 746-1784
https://nopbc.org

Virginia Department for the Blind and Vision Impaired
Dedicated to enabling people who are blind or have low vision to achieve maximum level of employment, education, and personal independence. Provides an array of specialized services to blind Virginians of all ages. See site for information about local offices near you.
800-622-2155 V/TTY
www.vdbvi.org

Virginia School for the Deaf and the Blind
One of the oldest schools in Virginia and the second of its kind in the world, the Virginia School for the Deaf and the Blind (VSDB), located in historic and scenic Staunton, VA, was established by an act of the Virginia General Assembly on March 31, 1838. As the school celebrates more than 170 years of continued excellence in educating deaf and blind children, it remains at the forefront of educational technology. The school utilizes some of the latest and most advanced audio-visual equipment and disability tailored computer applications in its classrooms to provide its students with the best education.
540-332-9000 • 800-522-VSDB (8732)
vsdb.k12.va.us

CANCER

Alliance for Childhood Cancer
Provides a forum of national patient advocacy groups and medical and scientific organizations which meets regularly, shares ideas and concerns, and works collaboratively to advance research and policies to prevent cancer, and improve public education, and the diagnosis, treatment, supportive care and survivorship of children and adolescents with cancer.
www.allianceforchildhoodcancer.org

The American Cancer Society
National, community-based health organization dedicated to eliminating cancer through research, education, advocacy, and service. Can search for support programs and services in your area though the site.
800-227-2345
www.cancer.org

American Cancer Society Cancer Action Network (ACS CAN)
As the advocacy affiliate of the American Cancer Society, ACS CAN works to encourage elected officials and candidates to make cancer a top national priority. ACS CAN utilizes its expert capacity in lobbying, policy, grassroots, and communications to amplify the voices of patients in support of laws and policies that save lives from cancer.
www.acscan.org

American Childhood Cancer Organization
Network of support groups. Services provided by local groups include meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications.
Virginia Group • www.dccandlelighters.org
855-858-2226
www.acco.org

CancerCare
Provides free professional support services to those affected by cancer including counseling, education, financial assistance and practical help.
800-813-HOPE (4673)
www.cancercare.org

The Leukemia & Lymphoma Society (LLS)
Health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients. In addition to information for professionals, patients can also search for support services on this site.
www.lls.org

LiveStrong
Provides practical information, tools and support for people with cancer and their families and caregivers. See also on site information about innovative partnerships like LIVESTRONG at the YMCA, a 12-week exercise program for cancer survivors.
877-236-8820
www.livestrong.org

The National Cancer Institute (NCI)
Coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
800-4-CANCER (800-422-6237)
www.cancer.gov

National Children’s Cancer Society
Works to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children’s health through financial and in-kind assistance, advocacy, support services, education and prevention programs.
thenccs.org

Pleural Mesothelioma Center
Provides help and support to those affected by pleural mesothelioma: patients, family members, caregivers and loved ones.
www.pleuralmesothelioma.com

Cerebral Palsy

Ability Center of Virginia (formerly Cerebral Palsy of Virginia)
Serves children and adults with cerebral palsy and other developmental disabilities such as Down syndrome, autism,muscular dystrophy, intellectual disabilities, learning disabilities as well as hearing, speech and visual impairments.
757-497-7474
www.cerebralpalsyofvirginia.org

American Academy for Cerebral Palsy and Developmental Medicine
A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
www.aacpdm.org

Cerebral Palsy Group
National advocacy organization that was created to serve individuals and families who have been diagnosed with cerebral palsy. Provides the most up-to-date information and resources that are currently available. What you find on and throughout site has been thoroughly researched through a multitude of outlets and processes, including medical journals, medical literature, trusted medical websites and peer-reviewed articles.
https://www.facebook.com/cerebralpalsysupportgroup/

Cerebral Palsy Guide
National support organization dedicated to educating individuals and families about cerebral palsy. While raising awareness about this movement disorder, our team is also committed to providing informational support for children with CP and their parents and caregivers.
http://www.cerebralpalsyguide.com

Cerebral Palsy Guidance
An advocacy and support website dedicated to providing the most accurate and reliable cerebral palsy information to parents. From information on cerebral palsy symptoms to financial assistance to daily living articles, covering all aspects of cerebral palsy. All information is thoroughly researched and cited.
www.cerebralpalsyguidance.com

MyChild
Provides knowledge to help with the difficulties of caring for children with Cerebral Palsy, neuological disorders or other special needs.
800-692-4453
www.cerebralpalsy.org

United Cerebral Palsy
Member of national organization which strives to ensure the inclusion of persons with disabilities in every facet of society.
800-872-5827
www.ucp.org

CONDUCT/ BEHAVIOR CONDITIONS

Association for Positive Behavior Support (APBS)
An international organization dedicated to promoting research-based strategies that combine applied behavior analysis and biomedical science with person-centered values and systems change to increase quality of life and decrease problem behaviors. The Association is made up of professionals, family members, trainers, consumers, researchers, and administrators who are involved and interested in positive behavior support.
www.apbs.org

ConductDisorders.com
Online interactive forums, information and support for families with children who have conduct disorders such as Oppositional Defiance disorder (ODD) or Obsessive-Compulsive Disorder (OCD) or other diagnoses, but all of whom are oppositional and resistant to parenting.
www.conductdisorders.com

National Technical Assistance Center on Positive Behavioral Interventions and Supports (PBIS)
Established to address the behavioral and discipline systems needed for successful learning and social development of students. Provides capacity-building information and technical support about behavioral systems to assist states and districts in the design of effective schools. can search for Virginia contacts on this site.
www.pbis.org

Obsessive-Compulsive Foundation
Educates the public and professional communities about OCD and related disorders; provides assistance to affected individuals, their families and friends; and supports research to identify causes and effective treatments of OCD and related disorders.
www.ocfoundation.org

OCD Mid-Atlantic
Affiliate of the International OCD Foundation (IOCDF), locally based group made up of people with Obsessive Compulsive Disorder (OCD) and related disorders, as well as their families, friends, professionals and others.
www.ocdmidatlantic.org

CRANIOFACIAL DISORDERS

American Cleft Palate-Craniofacial Association (ACPA)
International non-profit medical society of health care professionals who treat and/or perform research on oral cleft and craniofacial conditions.
www.acpa-cpf.org

AmeriFace
Services include referrals to qualified cleft/craniofacial teams, access to educational materials about these medical conditions, emotional support for affected individuals and their families, a campaign to promote general public awareness about facial differences and the networking of individuals and families for support purposes. Website does not appear to have been updated since 2016.
888-486-1209
www.ameriface.org

Children’s Craniofacial Association (CCA)
Works to promotes public awareness of craniofacial conditions and social acceptance of individuals with facial disfigurement. Website has information about many types of craniofacial syndromes.
800-535-3643
www.ccakids.org

Cleft Lip/Palate Foundation
Information and referral services for patients with cleft palate, cleft lip and craniofacial anomalies. Can search for local specialists through this site.
800-24-CLEFT
www.cleftline.org

Craniofacial Program – Inova Fairfax Hospital for Children
Provides inpatient and outpatient evaluation and treatment of children with craniofacial anomalies.
703-970-2690
www.inovachildrens.org/craniofacial-services

FACES: The National Craniofacial Association
Provides resource files of specialized craniofacial centers and other relevant resources and the latest research and information on craniofacial disorders. Also has parent network.
800-332-2373
www.faces-cranio.org

Smile Train
International children’s charity with a sustainable approach to a single, solvable problem: cleft lip and palate. Millions of children in developing countries with unrepaired clefts live in shame, but more importantly, have difficulty eating, breathing and speaking. Cleft repair surgery is simple, and the transformation is immediate. Our sustainable model provides training and funding to empower local doctors in 85+ developing countries to provide 100%-free cleft repair surgery in their communities.
www.smiletrain.org

Virginia Smiles
Organization of parents who provide information and support to families and caregivers of children born with a cleft lip and/or cleft palate.
www.virginia-smiles.org/AboutUs.shtml

Craniofacial Clinics found on Virginia Smiles website
Institute for Craniofacial & Plastic Surgery • Norfolk • 757-627-6700 • www.cleft.org
Center for Cleft and Craniofacial Care • Richmond • 804-828-3042 • www.craniofacial.vcu.edu
Craniofacial Anomalies Clinic • Charlottesville • 434-924-2528
Cleft and Craniofacial Center • Roanoke • 540-224-5170 • www.carilionclinic.org/locations/cleft-craniofacial-center
www.virginia-smiles.org/Craniofacial.shtml

World Craniofacial Foundation
Dedicated to helping children with craniofacial abnormalities gain access to life-changing medical procedures.
www.worldcf.org

DEAF, DEAF/BLIND, HARD OF HEARING

Alexander Graham Bell Association for the Deaf and Hard of Hearing
Helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention.
www.agbell.org

American Association of the Deaf-Blind
National consumer advocacy organization for people who have a combination of deafness, blindness, partial sight or partial hearing. Site appears to have not been updated in several years.
www.aadb.org

Contact and Communication For The Deaf
Commercial site that provides (some free and some for cost) videos, flashcards, and other products to assist communication with and for the deaf. (thanks to Jackson for sending this link!)
www.five9.com/contact-and-communication-for-the-deaf

* * * * * * * * * * * * * * * * * * * * * * * * American Sign Language (ASL) Video Dictionaries and Courses

• American Sign Language University
Free self-study lessons including an ASL dictionary, signing videos, a printable sign language alphabet chart (fingerspelling), etc.
www.lifeprint.com

• Handspeak
Free sign language resources and extracurricular materials for language enthusiasts, ASL students and learners, instructors and teachers, interpreters, homeschoolers, parents and professionals for practice or self-study.
www.handspeak.com

• Signing Savvy
Sign language dictionary containing several thousand high resolution videos of American Sign Language signs, fingerspelled words, and other common signs used within the United States and Canada.
www.signingsavvy.com

• Start ASL
Comprehensive website featuring information and free classes in addition to a video dictionary.
www.start-american-sign-language.com

* * * * * * * * * * * * * * * * * * * * * * * *

American Society for Deaf Children
National organization of families and professionals committed to educating, empowering, and supporting parents and families.
800-942-2732
www.deafchildren.org

Better Hearing Institute
Conducts research and engages in hearing health education with the goal of helping people with hearing loss benefit from proper treatment. Links on site including Hearing Loss & Children, Hearing Loss and Adults as well as a Check Your Hearing Link.
www.betterhearing.org

Deaf and Hard of Hearing Services Center
Provides outreach services for the Virginia Department for the Deaf and Hard of Hearing.
800-552-7917 VTTY
www.deafhh.org

Described and Captioned Media Program
Browse from a library of over 4,000 free-loan described and captioned media titles. Works to provide all persons who are deaf or hard of hearing access to communication and learning through the use of captioned educational media and supportive collateral materials.
800-237-6213
800-237-6819 TTY
www.dcmp.org

Hands & Voices
Diverse membership includes those who are deaf, hard of hearing, and hearing impaired and their families who communicate orally, with signs, cue, and/or combined methods. Mission is to help children reach highest potential using whatever method works best for the child.
www.handsandvoices.org

Hearing Loss Association of America
Mission is to open the world of communication for people with hearing loss through information, education, advocacy and support. Can search for local contact info on site.
www.hearingloss.org

Helen Keller National Center for Deaf-Blind Youths and Adults
Mission is to enable each person who is deaf-blind to live and work in his or her community of choice. Also maintains a registry which provides basic information about persons of all ages with deaf-blindness in the United States.
www.hknc.org

iCanConnect Virginia
Provides No Cost communications technology—along with installation, training and support—to low-income, deaf-blind Virginia residents.Through this program, participants receive special equipment to help them make a phone call, send an e-mail, access the Internet and stay connected in today’s world.iCanConnect Virginia is administered by the Virginia Department for the Deaf and Hard of Hearing (VDDHH) in cooperation with the Department for the Blind and Vision impaired.
Virginia Department for the Deaf and Hard of Hearing • 800-552-7917 V/TTY
Department for the Blind and Vision Impaired • 800-622-2155 V/TTY
www.icanconnect.org/how-to-apply/virginia

The National Family Association for DeafBlind
National organization that advocates for all persons who are deafblind, encourages the founding and strengthening of family organizations in each state and collaborates with professionals who work with persons who are deaf-blind.
800-255-0411
www.nfadb.org

The National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. For health information: If you need immediate information, please call
800-241-1044
800-241-1055 TTY
www.nidcd.nih.gov

National Center on Deaf-Blindness
Provides technical assistance to families and agencies serving children and young adults who are deaf-blind.
www.nationaldb.org

Northern Virginia Resource Center for Deaf and Hard of Hearing Persons
Serves deaf and hard of hearing people and their families, friends, co-workers, employers, and business and government agencies that serve deaf and hard of hearing people.
703-352-9055
703-352-9056 TTY
571-350-8656 Videophone
www.nvrc.org

Three Hearing Loss Types: Effects and Common Treatments
Hearing loss types differ according to their causes. The three hearing loss types are sensorineural hearing loss (SNHL), conductive hearing loss, and mixed hearing loss.
https://online.maryville.edu/blog/hearing-loss-types/

Virginia Project for Children and Young Adults with Deaf-Blindness
Statewide program designed to provide technical assistance, training, distance education, and networking information to families, teachers, and service providers of individuals birth through 21 who have both a hearing loss and a vision loss.
partnership.vcu.edu/programs/education/vadbp/

Virginia School for the Deaf and the Blind
One of the oldest schools in Virginia and the second of its kind in the world. The school utilizes some of the latest and most advanced audio-visual equipment and disability tailored computer applications in its classrooms to provide its students with the best education possible.Staunton
540-332-9000 • 800-522-VSDB (8732)
vsdb.k12.va.us

Virginia Department for the Deaf and Hard of Hearing (VDDHH)
Works to reduce and, ultimately, eliminate the communication barriers between persons who are deaf or hard of hearing and those who are hearing. Programs offered: Technology Services, Consumer, Outreach, Interpreter, and Community Support Services, Interpreter Services and Quality Assurance Screening and Sign Language Classes listed by region.
804-662-9502 V/TTY
804-325-1290 (Video Phone: FOR USE ONLY BY CALLERS WHO ARE DEAF)
800-552-7917 V/TTY
www.vddhh.org

Virginia Early Hearing, Detection and Intervention Program
Provides information and referral to families regarding newborn hearing screening, follow-up testing, and early intervention services. Website has an extensive list of newborn hearing screening providers throughout the state. From home page, search for participating locations.
www.vdh.virginia.gov

Virginia Relay
Enables people who are deaf, hard of hearing, deafblind, or speech disabled to communicate by TTY (text telephone) or other assistive telephone with anyone who uses a standard phone.
Dial 711.
866-894-4116 (Voice)
866-246-9300 (TTY)
ww w.varelay.org

DEVELOPMENTAL DISABILITIES

The Arc of Virginia
Advocacy efforts include providing information and education, and increasing public awareness of the human and civil rights of individuals with intellectual and other developmental disabilities. Parent to Parent group provides telephone matches between parents looking for support and information from trained veteran parents.
State Office: Richmond • 804-649-8481 • www.thearcofva.org
Chapters:
The Arc of Augusta • www.arcofaugusta.org
The Arc of Central Virginia • 434-845-4071 • www.arcofcva.org
The Arc of Eastern Shore • 757-442-3312 • www.facebook.com/thearcoftheeasternshore
The Arc of Southern Virginia/Halifax • 434-222-8931 www.facebook.com/arcsouthernvirginia/
Hanover Arc • 804-798-2400 • www.thearcofhanover.org
The Arc of Harrisonburg & Rockingham • 540-437-9214 • www.hrarc.org
The Arc of Lenowisco • -276-431-4159 •
autismnow.org/local/arc-of-lenowisco/
The Arc of Loudoun County • 703-777-1939 • www.thearcofloudoun.org
The Arc of North Central Virginia • 571-399-5390 • www.arcofncv.org
The Arc of Northern Shenandoah Valley • 540-692-9650 • arcnsv.org
The Arc of Northern Virginia• 703-208-1119 • www.TheArcofNoVa.org
The Arc of New River Valley • www.thearcnrv.org
The Arc of the Peninsula • 757-896-6461• versability.org
The Arc of the Piedmont • 434-977-4002 • www.thearcofthepiedmont.org
The Arc of Greater Prince William/INSIGHT • 703-670-4800 • www.arcgpw.org
The Arc of Rappahannock • 540-318-6061 •
The Greater Richmond ARC • 804-358-1874 • https://www.soar365.org
The Arc of Greater Roanoke Valley • 540-520-1880 •
www.facebook.com/arvcgrv.org/
The Arc of Rockbridge • 540-460-2710 • www.facebook.com/thearcofrockbridge/
The Arc of Smyth County • 276- 783-2609
The Arc of Southside • 434-836-3272 • www.thearcofsouthside.org
The Arc of Southeastern Virginia • 757-828-6228
The Arc of the James • 804-446-1705 • www.thearcsoj.org
The Arc of Warren County • 540-635-2725
The Arc of Greater Williamsburg • 757-229-3535 • www.thearcgw.org

Virginia Board for People with Disabilities
Promotes and facilitates maximum independence, productivity, family support, and community participation of people with disabilities through advocacy, education, and prevention initiatives.
804-786-0016
www.vaboard.org

Virginia Department of Behavioral Health and Developmental Services
Provides services through a coordinated system of care that respects and promotes the full participation of individuals and their families.
804-371-8977 V/TDD
804-786-3921
www.dbhds.virginia.gov

Virginia Easter Seals
Provides services and support, and creating solutions that improve the lives of children and adults with disabilities or other special needs and their families. Can search for local offices on this site.
800-886-3771
www.easterseals.com/NCVA/

DOWN SYNDROME

Buddy Walks
A program of the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down Syndrome. To find a local Buddy Walk in your community, visit the “Find a Walk” section of the website.
www.buddywalk.org

Down Syndrome Association of Fredericksburg
Connects to parents, community members through Facebook.
www.facebook.com/pages/Down-Syndrome-Association-of-Fredericksburg/180877595824

Down Syndrome Association of Greater Richmond
Provides access to current and accurate information on Down syndrome. Also fosters programs that focus on education, community services, public awareness, medical issues, research advocacy, legal issues and parenting.
804-525-7731
www.dsagr.com

Down Syndrome Association of Hampton Roads
Serves needs of individuals with Down Syndrome and their families.
Norfolk • 757-466-3696
www.dsahr.org

Down Syndrome Association of Northern Virginia
Provides individuals with Down syndrome and their families with educational, financial, medical, legal and social support and resources. Works to increase community awareness of the capabilities and contributions of individuals with Down syndrome.
703-621-7129
www.dsanv.org

Down Syndrome Association of Roanoke
Goal is to improve the quality of life for all persons with mental and/or physical handicaps and to make Southwest Virginia a model community for individuals with disabilities.
540-772-6460
www.dsar.org

Down Syndrome Association of Virginia Peninsula
Offers New Parent Welcome Information, outreach to area hospitals, monthly meetings and social events.
757-890-3013

Down Syndrome Education USA
Associated with Down Syndrome Education International. Works to develop and evaluate education programs, offers conferences for families, teachers and other professionals and supports scientific research.
www.dseusa.org/en-us

Mosaic Down Syndrome on the Web
Website designed to disseminate information about Mosaic Down Syndrome.
www.mosaicdownsyndrome.com

National Down Syndrome Congress
National advocacy organization for Down Syndrome, provides leadership in all areas of concern related to Down syndrome.
800-232-NDSC (6372)
www.ndsccenter.org

National Down Syndrome Society
Distributes informative materials, encourages and supports the activities of local parent support groups, sponsors conferences and undertakes advocacy efforts to increase awareness and acceptance of people with Down syndrome.
800-221-4602
www.ndss.org

Support Organization for Trisomy 18,13, and Trisomy Related Disorders
Network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders.
www.trisomy.org

INTELLECTUAL DISABILITIES
See also Developmental Disabilities

American Association on Intellectual and Developmental Disabilities
Promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.
202-387-1968
www.aaidd.org

Community Alternatives, Inc. (CAI)
Founded in 1980 to provide supported employment opportunities to adults with emotional and physical disabilities in Virginia Beach, Virginia. As the need for services in the Virginia Beach area grew, CAI expanded programming to serve children and adults with intellectual disabilities and other developmental disabilities. Is now a regional leader advocating for a continuum of community based services for children and adults with physical disabilities, developmental disabilities, and co-occurring mental health and substance abuse needs.
Norfolk • (757) 468-7000
www.comalt.org

National Association for the Dually Diagnosed
Association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs.
www.thenadd.org

The Arc of VA
Advocates for the human and civil rights of individuals with intellectual and other developmental disabilities. Advocacy efforts include providing information and education, and increasing public awareness. Parent to Parent group provides telephone matches between parents looking for support and information from trained veteran parents. Search above for listing of regional offices.
State Office: Richmond • 804-649-848
www.thearcofva.org

VOR
Represents primarily individuals with intellectual disabilities and their families/guardians. VOR advocates that the final determination of what is appropriate depends on the unique abilities and needs of the individual and desires of the family and guardians.
877-399-4867
www.vor.net

JUVENILE DIABETES

American Diabetes Foundation
Provides information, advocacy and support for families.
800-DIABETES (342-2383)
Virginia • 757-424-6662
www.diabetes.org

Children with Diabetes
Online community resource for kids, families and adults with diabetes.
www.childrenwithdiabetes.com

Juvenile Diabetes Research Foundation
A leading nongovernmental funder of diabetes research. Can search for local chapters through this site.
800-533-CURE (2873)
www.jdrf.org

LEARNING AND ATTENTION ISSUES

ADHD Resource Group of Northern Virginia
Non-profit organization devoted to helping the ADHD community in Northern VA and surrounding areas. Join mailing list to stay informed of educational events that can assist in meeting the challenges of an ADHD diagnosis.
Fairfax • 703-738-9984
www.adhdnova.org

Children and Adults with Attention Deficit Disorder
Provides support and advocacy, public and professional education, and encouragement for individuals with AD/HD andthose who care for them.
800-233-4050
Hampton Roads • www.chadd.net/chapter/435
Northern Virginia • www.meetup.com/novachadd
www.CHADD.org

Council for Learning Disabilities
An international organization concerned about issues related to students with learning disabilities.
www.cldinternational.org

International Dyslexia Association
A scientific and educational organization dedicated to the study and treatment of dyslexia.
dyslexiaida.org

LEAF Behavior Support
Provides behavior & educational consulting, family training, academic intervention families since 2011 and is in partnership with Community Direct Services, Inc., a Hampton Roads Behavioral Health Agency.
Virginia Beach
757-971-1414
www.learnwithleaf.com

Learning Ally
Works with leading publishers and technology innovators to bring accessible materials to individuals with visual and learning disabilities including textbooks that are available in every grade level and most subjects.
800-221-4792
www.learningally.org

Learning Disabilities Association of America
Focuses on enhancing educational and vocational services for individuals with learning disabilities who live in Virginia while supporting the efforts of LDA at the national level.
ldaamerica.org

Learning Disabilities Resources
Site contains lists of tools, schools, organizations and professionals and other resources for the LD community as well as articles and commentaries.
www.ldresources.com

LDOnline
Provides parents and teachers with accurate, authoritative information about learning disabilities.
www.ldonline.org

National Center for Learning Disabilities
Dedicated to increasing opportunities for all individuals with learning disabilities to achieve their potential by increasing public awareness and understanding of learning disabilities.
www.ncld.org

The National Institute for Learning Development
Established to assist schools, organizations, and individuals in the development of programs for students with specific learning disabilities.
757-423-8646
www.nild.org

Smart Kids with Learning Disabilities
Dedicated to empowering the parents of children with learning disabilities (LD) and attention-deficit disorder (ADHD). Mission is to educate, guide and inspire families of children with learning disabilities or ADHD—and to change the perception of learning disabilities as a stigmatizing condition.
www.smartkidswithld.org

TeachingLD
A service of the Division for Learning Disabilities (DLD) of the Council for Exceptional Children. Readers can find information about curriculum-based measurement for monitoring student progress; teaching methods such a co-teaching and direct instruction; and current issues such as response-to-intervention models.
www.teachingld.org

Yale Center for Dyslexia & Creativity
Mission is to uncover and illuminate the strengths of those with dyslexia, disseminate information, practical advice, and the latest innovations from scientific research, and transform the lives of children and adults with dyslexia.
dyslexia.yale.edu

MENTAL HEALTH
Includes information about Emotional Disabilities, Mental Illness, Mental Health and Mood Disorders

101 Leading Sites on Bipolar Disorder and Depression
Informational page on a commerical site.
www.mastersincounseling.org/bipolar-depression.html

American Academy of Child and Adolescent Psychiatry
Provides information to aid in the understanding and treatment of the developmental, behavioral, and mental disorders.
www.aacap.org

Anxiety Disorders Association of America
Promotes the early diagnosis, treatment and cure of anxiety disorders, and is committed to improving the lives of the people who suffer from them. Can search for therapists and support groups on this site.
www.adaa.org

Bazelon Center for Mental Health Law
The nation’s leading civil rights organization representing people with mental illnesses or mental disabilities.
202-467-5730
www.bazelon.org

Centra Bridges Treatment Center
Residential treatment for boys and girls with a wide-range of emotional and behavioral problems. The goal is to provide the therapeutic intervention, support and structure necessary for each resident to be successful.
Lynchburg • 434.200.5700
www.centrahealth.com/facilities/bridges-treatment-center

Community Service Boards (CSB)
The mission of the Virginia Association of Community Services Boards is to achieve a publicly-funded system of quality public and private services in Virginia that:
• Is ultimately responsive to individuals with behavioral health and developmental disability service needs, and their families
• Focuses on community-based supports for individuals with behavioral health and developmental disability service needs
• Ameliorates and prevents disabling conditions
• Promotes independence, recovery, behavioral health and education of the public about the needs of individuals with behavioral health and developmental disability service need
Search for local offices on the site.
www.vacsb.org

Critical Mental Health Resources For College Students
Resource page from site that helps students search nationwide for colleges that offer online courses and degrees. Also provides resources such College Students and College Students Living With A Chronic Condition. See listing also under Educational Resources.
www.onlinecolleges.net/for-students/mental-health-resources

Depression and Bipolar Support Alliance
Patient-directed national organization focusing on the most prevalent mental illnesses.Can search for Chapters and Support Groups on this site. Chapters with websites are listed here. Can also search for online support groups through main site.
800-826-3632
www.dbsalliance.org

Healthline.com/health/bipolar-disorder
Portion of the Healthline website with a wealth of information devoted to bipolar symptoms, tests, treatments, etc.
www.healthline.com/health/bipolar-disorder

Mental Health America
The country’s oldest and largest non-profit organization addressing all aspects of mental health and mental illness. Search for Virginia affiliates on this site.
800-969-NMHA (6642)
800-433-5959 TTY
Virginia Headquarters
Richmond • 804-257-5591 • www.mhav.org
www.nmha.org

MentalHealth.gov
Provides one-stop access to U.S. government mental health and mental health problems information to educate and guide; the general public, health and emergency preparedness professionals, policy makers, government and business leaders, school systems and local communities.
www.mentalhealth.gov

National Alliance on Mental Illness
The nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. NAMI advocates for access to services, treatment, supports and research and is steadfast in its commitment to raise awareness and build a community for hope for all of those in need.NAMI is the foundation for hundreds of NAMI State Organizations, NAMI Affiliates and volunteer leaders who work in local communities across the country to raise awareness and provide essential and free education, advocacy and support group programs. Serach for local affiliates by county.
804-285-8264 • 888-486-8264 Helpline
www.namivirginia.org

National Institute of Mental Health
The mission of NIMH is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure. 24-hour hotline of the National Suicide Prevention Lifeline at 800-273-TALK (1-800-273-8255) to be connected to a trained counselor at a suicide crisis center nearest you. Can also use Live Online Chat option through this site.
www.nimh.nih.gov

Riverside Behavioral Health Center
offers the most comprehensive range of behavioral health programs on the Virginia Peninsula, including acute care for children and adults, crisis assessment and residential treatment for adolescents.
Hampton • 757- 827-1001
www.riversideonline.com/medical-services/behavioral-health

Substance Abuse and Mental Health Services Administration SAMHSA)
Mission is to reduce the impact of substance abuse and mental illness on America’s communities.Can use this site to locate local Behavioral Health Treatment Services
Suicide Prevention Lifeline • 800-273-8255
National Helpline • 800-662-4357
Disaster Distress Helpline • 800-985-5990
www.samhsa.gov

SoCal Empowered
This site is based in California, but has good information. Dedicated to raising awareness on mental health and supporting those who may be struggling. We’ve created an ultimate guide to mental health in the workplace which discusses how mental health affects businesses and employees and what employees and employers can do to support mental health.
https://socalempowered.com/ultimate-guide-to-mental-health-in-the-workpla

Ten Things All Great Therapists Should Know
Traits that distinguish an effective therapist. Posted on a commercial page.
www.counselingdegree.com/what-all-great-therapists-should-know

Virginia Department of Behavioral Health and Developmental Services
Providing services through a coordinated system of care that respects and promotes the full participation of individuals and their families.
804-371-8977 V/TDD
804-786-3921
www.dbhds.virginia.gov

Virginia State Mental Health Facilities
State facilities provide highly structured, intensive services for citizens of the Commonwealth of Virginia who have a mental illness, intellectual disabilities or are in need of substance abuse services. In the evolutionary movement towards a single, integrated system of care, increased emphasis has been placed on the establishment of community services and on the more effective and efficient use of state facilities. This emphasis has defined the role of state facilities as one of several resources in an overall continuum of care. Patients are initially evaluated and referred to the mental health facilities by staff from Community Services Boards.
Commonwealth Center for Children and Adolescents
Staunton • 540-332-2100 • https://ccca.dbhds.virginia.gov
Southwestern Virginia Mental Health Institute
Marion • 276-783-1200 • www.swvmhi.dbhds.virginia.gov
Catawba Hospital
Catawba • 540-375-4201 • 276-783-1365 • www.catawba.dbhds.virginia.gov
Southern Virginia Mental Health Institute
Danville • 434-799-6220 • www.svmhi.dbhds.virginia.gov
Central State Hospital
Petersburg • 804-524-7000 • www.csh.dbhds.virginia.gov
Eastern State Hospital
Williamsburg • 757-253-5161 • www.esh.dbhds.virginia.gov
Western State Hospital
Staunton • 540-332-8000 • www.wsh.dbhds.virginia.gov
Northern VA MH Institute
Falls Church • 703-207-7100 • www.nvmhi.dbhds.virginia.gov
www.dbhds.virginia.gov/about-dbhds/facilities

Virginia Treatment Center for Children
Family focused inpatient and outpatient care. Inpatient programs include Acute Care Crisis Stabilization and Evaluations. Outpatient programs include evaluations, family and individual therapy and specialty clinics.
804.828.3129 (Receptionist and Outpatient Services)
855.546.7792 (Inpatient Services)
www.chrichmond.org/services/mental-health/mental-health

VOCAL
Mission is to strengthen the mental health system in Virginia by creating alternatives and complements to services currently available. Also works to keep people connected so that they may strengthen one another through self-determination and peer leadership.
804-343-1777
www.vocalvirginia.org

NEUROLOGICAL DISORDERS
(See ADHD under Learning and Attention Issues)

The Epilepsy Foundation
National organization that works for people affected by seizures through research, education, advocacy and service.
800-332-1000
https://www.epilepsy.com

Epilepsy Foundation of Virginia
Promotes awareness about epilepsy and provides assistance to those with the disorder. Look for local offices
434-924-8669
www.epilepsyva.com

Functional or Dissociative Neurological Symptoms : a patient’s guide
Most people with functional or dissociative neurological symptoms have a combination of symptoms like “weakness, numbness and fatigue” or “blackouts and sleep problems.” Use site to click on a symptom or use the menu to explore the symptoms that are relevant to you.
www.neurosymptoms.org

National Institute of Neurological Disorders and Stroke
The nation’s leading supporter of biomedical research on disorders of the brain and nervous system. Website includes large listing of information on individual disorders.
800-352-9424 • 7-1-1 (TRS)
www.ninds.nih.gov

National Resource Center on AD/HD
A program of CHADD, funded through a cooperative agreement with the Centers for Disease Control and Prevention, the center is a clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD).
800-233-4050
www.help4adhd.org

Tourette Syndrome Association, Inc.
Mission is to identify the cause of, find the cure for and control the effects of this disorder. Also offers resources and referrals. Can search for local support groups and providers on this site.
Mid-Atlantic Chapter • 443-327-9667 • www.taamac.org
www.tsa-usa.org

NEUROMUSCULAR CONDITIONS

Families of Spinal Muscular Atrophy
Promotes research to find a cure for Spinal Muscular Atrophies and supports families affected by SMA.
800-886-1762
curesma.org

Muscular Dystrophy Association
Programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public
health education.
800-572-1717
https://www.mda.org

Myasthenia Gravis Foundation of America
Goal is to facilitate the timely diagnosis and optimal care of individuals affected by MG and closely related disorders.
www.myasthenia.org

Spinal Muscular Atrophy Foundation
Mission is to accelerate the development of a treatment or cure for SMA, the number one genetic killer of infants and toddlers.
877-FUND-SMA
www.smafoundation.org

United Spinal Association
Dedicated to enhancing the quality of life of all people living with spinal cord injuries and disease (SCI/D), and providing them and their loved ones, care providers and professionals with needed resources. See Disability Products & Services Guide on this site.
www.spinalcord.org

United Spinal Association of Virginia
Committed to establishing and promoting vital community-based services for people in this state affected by spinal cord injury/disease (SCI/D). Our members include, individuals living with SCI/D, family and friends, hospitals and healthcare professionals, DME manufacturers and suppliers, and a multitude of other highly devoted organizations.
(804)803-3696
www.unitedspinalva.org

RARE DISORDERS AND GENETIC CONDITIONS

American Association for Klinefelter Syndrome Information and Support
National volunteer organization with the mission of education, support, research and understanding of XXY and its variants, collectively known as Klinefelter Syndrome.
888-466-5747
www.aaksis.org

Angelman Syndrome Foundation
A genetic disorder that is now believed to have been misdiagnosed as cerebral palsy, autism or other childhood disorders. Mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.
www.angelman.org

Birth Defect Research for Children, Inc.
Provides parents with information about birth defects and support services for their children. BDRC has a parent-matching program linking families who have children with similar birth defects.
www.birthdefects.org

Celiac Disease Foundation
Informs, assists, and supports people with information about Celiac Disease (CD) and Dermatitis Herpetiformis (DH). Distributes reliable, up-to-date materials about the disease and the gluten-free lifestyle to assist individuals with CD/DH and those yet to be diagnosed.
www.celiac.org

Chromosome Deletion Outreach, Inc.
Education, advocacy, information and support for all those affected by any rare chromosome disorder.
www.chromodisorder.org

CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) Association of America
Detailed information about CFS, its symptoms, diagnosis, treatment, and important research findings. Myalgic encephalomyelitis (ME), previously called chronic fatigue syndrome (CFS), is a complex and debilitating multi-system, chronic disease with a serious impact on one’s quality of life. While “ME/CFS” is the preferred name by many, this disease has also been called systemic exertion intolerance disorder (SEID), chronic fatigue immunity deficiency syndrome (CFIDS), or post-viral fatigue syndrome (PVFS).
solvecfs.org

Cystic Fibrosis Foundation
Dedicated to assuring the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Virginia Chapter • 804-527-1500
www.cff.org/Chapters/virginia

Dental Effects of Celiac Disease
Informational page of a commercial dentistry and orthodontics practice. Thanks Sonia for sending this link!
www.mainstreetsmiles.com/dental-effects-of-celiac-disease

Diastrophic Help Site
Website helps the parents of children with diastrophic dysplasia (DDs) solve the very early questions of self-care and adjustments to the home and school environments. Website has not been updated since 2016.
pixelscapes.com/ddhelp

Eating Gluten-Free for Health
Page of commercial website with useful information. Thanks to Emily for this resource!
www.orbera.com/o_orbera_article3

FRAXA
Supports scientific research aimed at finding a treatment and a cure for Fragile X syndrome.
www.fraxa.org

The Genetic Alliance
An international coalition of individuals, professionals and support organizations working together to promote healthy lives for everyone impacted by genetics.
www.geneticalliance.org

Genetic and Rare Diseases Information Center
Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), the site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.
888-205-2311
rarediseases.info.nih.gov

Human Growth Foundation, Inc.
Helps children and adults with disorders related to growth or growth hormone through research, education, support and advocacy.
800-451-6434
www.hgfound.org

International Rett Syndrome Alliance
Supports and encourages medical research to find a cure for Rett syndrome, to increase public awareness and to provide informational and emotional support to families.
800-818-RETT
www.rettsyndrome.org

Klinefelter Syndrome Support Website
Klinefelter Syndrome (KS) is a condition that occurs in men who have one or more extra X chromosomes. The syndrome can affect boys and men at different stages of life and their physical, language, and social development.
www.klinefeltersyndrome.org

Little People of America
Offers information on employment, education, disability rights. adoption, medical issues, clothing, adaptive clothing, and the many stages of parenting a short-statured child – from birth to adult.
888-LPA-2001
www.Lpaonline.org

The MAGIC Foundation
Provides support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. Includes support services for adults who were also impacted as children by these disorders.
800-362-4423
www.magicfoundation.org

March of Dimes Birth Defects Foundation
Mission is to reduce and prevent birth defects and infant mortality through research, community services, education and advocacy.
Virginia Chapter • www.marchofdimes.com/virginia
Chesapeake • 757-361-0000
www.marchofdimes.com

The Moebius Syndrome Foundation
Moebius syndrome is a craniofacial/neurological disorder that manifests itself primarily in facial paralysis. The mission of the Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
www.moebiussyndrome.com

National Fragile X Foundation
Provides support and resources to families of individuals with Fragile X Syndrome. Also participates in activities to raise awareness and funds to support research.
800-688-8765
www.fragilex.org

Neurofibromatosis, Inc.-Mid-Atlantic
Neurofibromatosis (NF) is a genetic disorder that causes tumors to grow on the nerves anywhere in the body at any time. Organization provides information and referrals to professional resources; camp; peer counseling.
nftumorfoundation.org

National Hemophila Foundation (NHF)
Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
800-424-2634
National Capital Area Chapter • 703-352-7641 • www.hacacares.org
www.hemophilia.org

National Organization for Rare Disorders
Provides information, including an A-Z index of hundreds of rare diseases, and tries to link parents to support groups for families of children with rare or chronic disabilities.
202-588-5700
www.rarediseases.org

The National MPS Society
Supports research and public and professional awareness to help individuals and families affected by an MPS Mucopolysaccharidosis) or ML (Mucolipidosis) disease.
877-MPS-1001
www.mpssociety.org

The National Tay-Sachs & Allied Diseases Association (NTSAD)
Dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to providing information and support to affected individuals and families.
800-906-8723
www.ntsad.org

Orphanet
A reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.
www.orpha.net

Patients Like Me
Committed to putting patients first by providing an effective way to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.
www.patientslikeme.com

The Prader-Willi Syndrome Association
Provides a network of information, support services, and research endeavors to meet the needs of affected children, adults and their families.
800-926-4797
www.pwsausa.org

Prisms
Provides information and support to families of persons with Smith-Magenis Syndrome (SMS) and fosters partnerships with professionals to increase awareness and understanding of SMS.
www.prisms.org

Spina Bifida Association of America
Promotes the prevention of spina bifida and works to enhance the lives of all affected by it. Can search for clinics on this site.
800-621-3141
spinabifidaassociation.org

Turner Syndrome Society of the U. S.
Provides health-related resources to patients, families and physicians for the diagnosis and treatment of Turner syndrome. Can search for local support on this site.
800-365-9944
www.turnersyndrome.org

Unique The Rare Chromosome Disorder Support Group
An international group, supporting, informing and networking with anyone affected by a rare chromosome disorders and with any interested professionals. As part of its services, Unique offers helplines for new and existing member families and professionals to find out more information about the group and about specific rare chromosome disorders.
United Kingdom
www.rarechromo.org

Williams Syndrome Association
Provides the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.
800-806-1871
www.williams-syndrome.org

SPEECH AND LANGUAGE CONDITIONS

Augmentative and Alternative Communication (AAC) Institute
Organization dedicated to the most effective communication for people who rely on augmentative and alternative communication (AAC).
www.aacinstitute.org

Childhood Apraxia of Speech Association of North America
Mission is to strengthen the support systems in the lives of children with apraxia so that each child has their best opportunity to develop speech.
www.apraxia-kids.org

National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.
800-241-1044 • 800-241-1055 TTY
www.nidcd.nih.gov

Speech-Language-Hearing Association of Virginia
Association of audiologists and speech language pathologists working to develop, expand, and provide information concerning speech, language, and hearing services.
888-729-7428
www.SHAV.org

The Stuttering Foundation Of America
Resources, services and support for those who stutter, as well as support for research into the causes of stuttering.
800-992-9392
www.stutteringhelp.org

United States Society for Augmentative and Alternative Communication
National chapter of ISAAC, the International Society for Augmentative and Alternative Communication; organization dedicated to supporting the needs and desires of people who use AAC, as well as the family members, professionals, and manufacturers making up that community.
www.ussaac.org

GENERAL RESOURCES

ADVOCACY AND GENERAL INFORMATION

211 Virginia
2-1-1 is an easy to remember phone number connecting people with free information on available community services. When you dial 2-1-1, a trained professional listens to your situation and suggests sources of help using one of the largest databases of health and human services in Virginia. 2-1-1 VIRGINIA website provides access to services in your community and statewide.
www.211virginia.org

Access Advocates
Specializes in ADA compliance and was founded with the purpose of bringing professional services to people with disabilities in order to create more ADA compliant community. Provides free ADA resources to assist consumers in their ADA compliance advocacy efforts.
www.accessadvocates.com

Access Ministry of McLean Bible Church
Serves the community by equipping people with disabilities and their families to become full participants and contributors in the church and their community. See website for many services offered.
https://mcleanbible.org/tysons/special-needs/

Administration for Community Living (ACL)
ACL brings together the efforts and achievements of the Administration on Aging (AoA), the Administration on Intellectual and Developmental Disabilities (AIDD), and the HHS Office on Disability to serve as the Federal agency responsible for increasing access to community supports, while focusing attention and resources on the unique needs of older Americans and people with disabilities across the lifespan.
https://acl.gov

American Association of People with Disabilities (AAPD)
Describes itself as a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.
https://www.aapd.com/advocacy/

The Arc of Virginia and their local chapters
See Arc information listed elsewhere in this list.

The Association for the Severely Handicapped (TASH)
An international association of people with disabilities, their family members, other advocates, and professionals working for a society in which inclusion of all people in all aspects of society is the norm.
202-540-9020
www.tash.org

Campaign for Disability Employment
Collaborative effort among several disability and business organizations that is working to change attitudes about disability and employment. Disability related-resources available from the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP). Federal resources on disability and employment can be found on the website of the (CDE)
www.whatcanyoudocampaign.org

Center for Family Involvement
As part of the Partnership for People with Disabilities at Virginia Commonwealth University, this group works with families to increase their skills as advocates, mentors, and leaders so families, and children and young adults with disabilities can lead the lives they want.
Richmond • (877) 567-1122 • TTY RELAY: (800) 828-1120
www.centerforfamilyinvolvement.org

Children’s Disability Information
Extenisve information, articles, books and support for families. It appears that site has not been updated for several years.
www.childrensdisabilities.info

Office of Children’s Services
Collaborative, child-centered, family-focused, community-based system of care that effectively meets the needs of youth and their families in the Commonwealth.
To search for services across the state, visit the Service Fee Directory
www.csa.virginia.gov

Council of Community Services
A member organization of the Virginia’s statewide information and referral system which works to “ensure access to information and resources needed by individuals, organizations and decision-makers to forecast and meet human needs to improve the quality of life of all members of the community.”
800-354-3388
540-985-0131
www.councilofcommunityservices.org

Disabled World –
Primary focus is to provide information and news to the public, disability community and organizations, as well as disabled rights campaigners, via Disabled World News Service, Articles, Press Releases, and Disability Videos.
www.disabled-world.com

Disability Events Calendar
Portion of Disabled World website displaying listings which include disability awareness, exhibitions of disabled products and aids, daily living aids, home-care, conferences, workshops, festivals, and various other special events. The list of coming events concerning disability and health is updated regularly with information gathered from public sources, submissions by the public, and health and disability organizations worldwide.
www.disabled-world.com/news/events

disAbilityNavigator
A Virginia Navigator website, mission is to provide helpful, free resource information associated with aging, disabilities, post-military life, and overall well-being. Find disability services in Virginia, including personal assistance, accessible housing, benefits and more.
http://disabilitynavigator.org

Disability Rights Education and Defense Fund Inc.
A national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training.
510-644-2555 VTTY
www.dredf.org

Disability Statistics
A Cornell University online resource for disability statistics. Created and maintained by the Employment and Disability Institute. Funded by the U.S. Department of Education National Institute on Disability and Rehabilitation Research.
www.disabilitystatistics.org

Exceptional Family Member Program
Provides comprehensive information on services and resources available to military families with special medical or educational needs. Each branch of the service has its own EFMP. Can also contact your local military base for more information.
800-342-9647
www.militaryonesource.mil/efmp

Faith Inclusion Network of Hampton Roads
Goal is to connect people with disabilities and their families to faith communities that are welcoming and genuinely want to include everyone. Also works to help faith communities become more inclusive by connecting them with resources and providing networking opportunities at conferences and meetings throughout the year. Locate additional faith communities in Southeastern Virginia on this site.
www.faithinclusionnetwork.org

FamilyVoices
National grassroots network of families, friends and advocates for health care services; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
888-835-5669
www.familyvoices.org

Guide To Social Security Disability Benefits
Helpful and comprehensive guide.
m-n-law.com/social-security-disability-insurance-benefits-guide

Hampton Committee for People with Disabilities
Assists with the services of the handicapped in the various functions of everyday life, including advising on programs, activities and legislative matters. The Committee is all volunteers and does not maintain an office or regular office hours.
Hampton • 757-727-6392
hampton.gov/198/Mayors-Committee-for-People-w-Disabilities

Jewish Social Service Agency of Metropolitan Washington
Offers special needs services to individuals and family members.
Northern Virginia Office • 703-204-9100
www.jssa.org

Mid-Atlantic ADA Center
Provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region (DC, DE, MD, PA, VA, and WV). Links to services and resources all over the U.S.
800-949-4232 V/TTY
www.adainfo.org

National Disability Rights Network
Serves a wide range of individuals with disabilities by guarding against abuse; advocating for basic rights; and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.
www.ndrn.org

National Organization on Disability
Advocates internationally and nationally for the mainstreaming andfull participation of people with disabilities in all aspects of life.
www.nod.org

National Rehabilitation Information Center
The library of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR.). We collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILRR.
800-346-2742
301-459-5984 TTY
www.naric.com

Olmstead LawWebsite
United States Supreme Court decision which states that persons with disabilities who live in, are “at risk” of living in, or are eligible for placement in facilities or institutions, have a right to live in the community if
• They and their treatment teams agree that they can live successfully in the community;
• They choose to live in the community; and
• Resources are available to help them live in the community.
www.olmsteadva.com

Parent Educational Advocacy Training Center (PEATC)
Virginia’s Parent Training and Information Center (PTI). Each state has at least one PTI Center to provide training & information to parents to enable them to participate more effectively with professionals in meeting the educational needs of their children.
800-869-6783
Falls Church • 703-923-0010 V/TTY
www.peatc.org

Partnership for People with Disabilities
Operates more than 20 federal and state programs which support individuals with disabilities and their families. Partnership maintains an interdisciplinary approach to all of its activities, which allows it to explore a wide spectrum of professional services and community interests as it seeks to expand opportunities to individuals with disabilities.
800-828-1120 TDD
804-828-3876
www.vcu.edu/partnership

REV UP Voting Campaign
REV UP stands for “Register, Educate, Vote, Use your Power!” The REV UP network is composed of grassroots coalitions and partner organizations that work to advance the Disability Vote. REV UP’s mission is to foster civic engagement. Search on the site.
https://www.aapd.com/advocacy/

Social Security Disability Resource Center
SSDRC.com is not the Social Security Administration, nor is it associated or affiliated with SSA. This site is a personal, private website that is published, edited, and maintained by former disability claims examiner Tim Moore. The goal of SSDRC is to inform readers about how the Social Security Disability and SSI Disability process works from start to finish. This includes what to expect before, during, and after a disability application has been processed, common mistakes that need to be avoided, and what to do and how to react in specific situations (for example, receiving notices of denial, obtaining the status of the claim at different points, providing needed evidence, and undergoing a disability interview with a Social Security Claims Representative).
www.ssdrc.com

TASK (Taking Action for Special Kids)
Independent non-profit agency serving the special needs citizens of Tazewell County for over 25 years. Helps families of special needs children get the services they need by providing information, referrals, support groups, workshops and advocacy.
276-979-0408
www.taskforkids.org

Virginia Beach Committee for Persons with Disabilities
The Mayor’s Committee works to improve the awareness of every person’s abilities rather than their disabilities. The Committee works to make Virginia Beach the most accessible city in the U.S.
website

Virginia Board for People with Disabilities
See listing and contact information elsewhere in this document.

Virginia Easy Access
A public private partnership with the Commonwealth of Virginia, SeniorNavigator, and 2-1-1 Virginia for seniors and adults with disabilities and the providers that support them.
800-552-3402 V/TTY
804-662-9333
https://easyaccess.virginia.gov

Voices for Virginia’s Children
The Commonwealth’s only statewide multi-issue organization advocating for children and youth, Voices promotes sound, far-reaching program and policy solutions, focusing on early care and education, health care, family economic success, and foster care and adoption.
804-649-0184
www.vakids.org

ASSISTIVE TECHNOLOGY

AssistiveTechnology Loan Fund Authority (ATLFA)
A low interest loan program that assists Virginians with disabilities to get the assistive technology they need. Also provides Telework loans for individuals working from home who need equipment for their home business.
866-835-5976
804-662-9000
www.atlfa.org

Center for Universal Design
National information, technical assistance, and research center that evaluates, develops, and promotes accessible and universal design in housing, commercial and public facilities, outdoor environments, and products. Works to improve environments and products through design innovation, research, education and design assistance.
• Site currently not funded and are unable at this time to provide assistance to design inquiries.
www.ncsu.edu/ncsu/design/cud

Center on Technology and Disability (CTD)
Funded by the U.S. Department of Education’s Office of Special Education Programs (OSEP) and designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services. CTD serves diverse audiences, including families, teachers, administrators, researchers, service providers, personnel preparation programs, family information and training centers, community resource centers, product developers and vendors, and other relevant programs.
• A U.S. Department of Education-funded project, CTD ended in May 2019. However, our resource-rich website will be available to you through 2021.
ctdinstitute.org

Children’s Assistive Technology Service (CATS)
Provides for the re-use of pediatric rehabilitation equipment and devices in Virginia. CATS serves as a no-cost resource to children with disabilities who need adaptive equipment and whose families have limited resources.
www.atdevicesforkids.org

Common Home Modifications for Those That Need More Assistance
Informational page about home modifications to help people navigate their homes independently. From assisting with navigating stairs to ensuring someone with visual concerns can safely move around a home, sometimes these modifications require an actual change to the house, its structure or its features.
www.homecity.com/home-modifications-and-selling-your-home

Home Modifications for Disabilities – Checklists and Funding
Information about home improvements, modifications, and repairs that can help older adults maintain their independence and prevent accidents. Work can range from simple changes, like replacing doorknobs with pull handles, to major structural projects such as installing a wheelchair ramp. Site also includes a checklist.
800-677-1116
eldercare.acl.gov/Public/Resources/Factsheets/Home_Modifications.aspx

Rehabilitation Engineering and Assistive Technology Society of North America
An interdisciplinary association of people with a common interest in technology and disability whose purpose is to improve the potential of people with disabilities to achieve their goals through the use of technology.
703-524-6686
www.resna.org

Virginia Assistive Technology System
Statewide project committed to improving the quality of life for all Virginians by increasing awareness and accessibility of assistive technology.
• VATS Central Office – Richmond
800-552-5019
804-662-9990
Toll Free TTY: 800-464-9950
• VATS Northern Regional Site – Helen A Kellar Institute for Human disAbilities • Fairfax
703-993-3929 • kihd.gmu.edu
www.vats.org

Woodrow Wilson Rehabilitation Center
Provides evaluation, consultation and treatment programs for individuals who require assistive technology to live, work and get to school as independently as possible.
Fishersville
800-345-9972
800- 811-7893 TTY
540-332-7132
www.wwrc.virginia.gov

CHILD CARE

Choosing Quality Child Care – A Resource Guide
Produced by the Divisions of Licensing Programs and Family Services in Richmond.
804-692-1787
www.dss.virginia.gov/family/cc/publications.cgi

Commonly Asked Questions About Child Care Centers And The Americans With Disabilities Act
800-514-0301
800-514-0383 TDD
www.ada.gov/childqanda.htm

Virginia Child Care Resource and Referral Network
Statewide organization established to promote and support quality child care resources throughout Virginia and to coordinate the efforts of local agencies. Search for local agencies on the website.
800-285-0846
866-481-1913
www.vachildcare.org

COMMUNITY SERVICE ORGANIZATIONS

Civitan International
A volunteer organization of clubs dedicated to serving individual and community needs with an emphasis on helping people with developmental disabilities. Search website for local groups.
www.civitan.org

Lions Clubs
In addition to programs which includes collection and distribution of used eyeglasses, Lions also work to serve the hearing impaired, promote diabetes awareness, sponsor youth programs and more. Search website for local groups.
https://www.lionsclubs.org/en/start-our-global-causes/vision

EARLY INTERVENTION/EARLY CHILDHOOD/PRESCHOOL

Child Development Resources
Provides services for children and their families, and provides training at the local, state, regional, and national levels for early childhood and early intervention professionals.
757-566-3300
www.cdr.org

Head Start
A national program that promotes school readiness by enhancing the social and cognitive development of children through the provision of educational, health, nutritional, social and other services to enrolled children and families.
866-763-6481
www.acf.hhs.gov/programs/ohs/

Infant & Toddler Connection
Provides early intervention supports and services to infants and toddlers from birth through age two who are not developing as expected or who have a medical condition that can delay normal development. Early intervention supports and services focus on increasing the child’s participation in family and community activities that are important to the family. In addition, supports and services focus on helping parents and other caregivers know how to find ways to help the child learn during everyday activities. These supports and services are available for all eligible children and their families regardless of the family’s ability to pay. Can search for local offices (Central Directory) through this site.
800-234-1448
https://www.itcva.online

National Association for the Education of Young Children (NAEYC)
A professional membership organization that works to promote high-quality early learning for all young children, birth through age 8, by connecting early childhood practice, policy, and research. We advance a diverse, dynamic early childhood profession and support all who care for, educate, and work on behalf of young children.
www.naeyc.org

Va Dept of Health Child Development Clinics
Provides diagnostic services for children with developmental delays or discrepancies, which may include such conditions as hyperactivity, behavioral disorders, health problems, learning problems and intellectual disabilities. The clinics perform multidisciplinary evaluations, including psychological, educational, medical (pediatrician), and social work components, depending on the needs of the child. Additional consultations and health related services available as needed. Satellite or field clinics may be conducted on a regular or as needed basis. Contact the Child Development Clinic nearest you to determine availability. Most clinics listed serve ages birth through 21 years.
Gate City • 276-386-3803
Harrisonburg • 540-568-6687
Norfolk • 757-683-8770
Richmond • 804-827-2100
Roanoke • 540-224-4520
www.vdh.virginia.gov/child-development-services

EDUCATIONAL RESOURCES
See also Schools for Individual School listings

ACCESS Project – Colorado State University
Offers information and resources about Universal Design for Learning (UDL) including a series of UDL modules, and a section on research being conducted at the university regarding the use of UDL in classes.Although the ACCESS Project officially ended in 2011, resources of this website are published as a public service.
accessproject.colostate.edu

The Association on Higher Education and Disability (AHEAD) in Virginia
Statewide organization of professionals committed to full participation in higher education for persons with disabilities. Affiliated with National AHEAD. Site contains a comprehensive list of disability service providers and ADA coordinators at two-year and four-year colleges and universities in Virginia.
www.ahead.org/about-ahead/about-overview/affiliates/ahead-virginia

All Kinds of Minds
Primary goal is to educate teachers, parents, educational specialists and students about differences in learning, so that children who are struggling in school because of the way their brains are “wired” are no longer misunderstood.
www.allkindsofminds.org

Center for Applied Special Technology (CAST)
Offers information related to Universal Design for Learning, including publications, products, and professional development resources.
www.cast.org

Center for Applied Special Technology (CAST)
Offers information related to Universal Design for Learning, including publications, products, and professional development resources.
www.cast.org

College Planning For Students With Disabilities
Extensive planning guide that provides tools you need to be successful in understanding the college environment for students with learning disabilities as well as your rights and potential accommodations. Whether it’s in-person or online college you’re pursuing, we’ll show you where to find the best resources to achieve your goals.
https://www.intelligent.com/college-planning-guide-for-students-with-learning-disabilities/

College Resources For Students With Disabilities
Page of commercial site that provides prospective college students with disabilities information about many campuses are equipped with offices and services that address accessibility, accommodation, and assistive technology for a diverse range of needs.
www.bestcolleges.com/resources/disabled-students

College Scholarships and Financial Aid for Students with Disabilities
Discover scholarships, both narrowly- and broadly-focused, that can help students with disabilities pay for their educations, as well as additional resources for obtaining funding.
www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/

Council for Exceptional Children
Advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
888-232-7733
www.cec.sped.org

Educational Resources Information Center
National information system funded by the U.S. Department of Education’s Institute of Education Sciences to provide access to education literature and resources.
h ttps://eric.ed.gov

Education Week
Weekly newspaper – reader can subscribe online and in hard copy – publishing information about current topics in education.
www.edweek.org

Guide to Trade and Vocational Schools
Vocational and career-oriented schools offer a specialized education for students who have specific career goal. Unlike community colleges and more general education avenues, students are able to focus solely on their career choice and receive training in the field.
www.accreditedschoolsonline.org/vocational-trade-school

National Center on Accessible Educational Materials
Provides resources and technical assistance for educators, parents, students, publishers, conversion houses, accessible media producers, and others interested in learning more about AEM and implementing AEM and the National Instructional Materials Accessibility Standard (NIMAS)
aem.cast.org

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * Homeschooling Resource Websites

• Help in School
Resources for the parents and teachers of students with special needs
www.helpinschool.net

• Home Educators Association of Virginia
More than 2,000 web pages of Virginia homeschool information, resources, field-trip ideas, etc.
www.heav.org

• Learning Abled Kids
Resource and support website with information, curriculum resources, and tools to homeschool bright children who have learning issues, including reading disabilities, dyslexia, dyscalculia, dysgraphia, central auditory processing disorder (CAPD), ADD, ADHD and more.
www.learningabledkids.com

• Virginia Home Schoolers Association
Volunteer organization providing information and advocating for the homeshoolers.
www.vahomeschoolers.org

• Home School Legal Defense Association
www.hslda.org

• Homeschool Central
Information and curriculum for homeschoolers.
www.homeschoolcentral.com

• Moore Expressions
A used and new book store specializing in homeschool materials.
Virginia Beach • 757-523-4965
www.mooreexpressions.com

________________________________________________________

IDEA Resources
Portion of the U.S. Dept of Education website that contains news and information on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation’s law that works to improve results for infants, toddlers, children and youth with disabilities.
idea.ed.gov

Inclusive Schools Network
Web-based resource for families, schools and communities that promotes inclusive educational practices. This resource has grown out of Inclusive Schools Week™ which works to encourage and empower people to design and implement effective inclusive schools, by sharing insights and best practices and by providing opportunities for connection.
www.inclusiveschools.org

National Association of Private Special Education Centers (NAPSEC)
An association representing private special education programs and affiliated state associations, established to ensure access for individuals to appropriate private special education programs and services.
www.napsec.org

Office of Special Education and Rehabilitation Services (OSERS)
Programs Include:
• Office of Special Education Programs (OSEP) – Dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.
• Rehabilitation Services Administration (RSA) Oversees formula and discretionary grant programs that help individuals with physical or mental disabilities to obtain employment and live more independently through the provision of such supports as counseling, medical and
www.ed.gov/about/offices/list/osers/index.html

onlinecolleges.net
A site that helps students search nationwide for colleges that offer online courses and degrees. Also provides resources such as Critical Mental Health Resources For College Students and College Students Living With A Chronic Condition
www.onlinecolleges.net

Parent Educational Advocacy Training Center (PEATC)
Assists families of children with disabilities through education, information and training. PEATC builds parent-professional partnerships to promote success in school and community life.
703-923-0010 V/TTY
www.peatc.org

Southeastern Cooperative Educational Programs
This organization provides a formal structure through which the participating school systems can plan and operate programs for children with special needs. SECEP presently comprises five programs:
• The Re-ED Program
• The Autistic Children’s Program (ACP)
• Educational and Behavioral Interventions for Challenging Students (EBICS)
• Tidewater Regional Alternative Education Program (TRAEP)
• Raising Expectations and Abilities for Children with Complex Health needs (REACH).
757-892-6100
www.secep.net

Think College
National organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. Think College supports evidence-based and student centered research and practice by generating and sharing knowledge, guiding institutional change, informing public policy, and engaging with students, professionals and families.
https://thinkcollege.net/about/what-is-think-college

Training/Technical Assistance Centers (T-TAC)
Works to improve educational opportunities and contribute to the success of children and youth with disabilities. Centers provide quality training and technical assistance in response to local, regional, and state needs through activities such as: consultation, information services, (including periodic newsletters), linking and networking resources together, lending library of multimedia resources and technology, long range planning, referral to other services and workshops.
• Virginia Commonwealth University, Richmond • 800-426-1595 • www.vcu.edu/ttac
• Old Dominion University, Norfolk • 888-249-5529 • www.ttac.odu.edu
• College of William and Mary, Williamsburg • 800-323-4489 • education.wm.edu/centers/ttac
• George Mason University, Fairfax • 703-993-3670 • ttac.gmu.edu
• James Madison University, Harrisonburg • 888-205-4824 • https://ttacjmu.org
• Virginia Polytechnic Institute and State University, Blacksburg • 800-848-2714 • www.ttac.vt.edu
• Radford University, Radford • 877-544-1918 • www.radford.edu/content/cehd/home/ttac.html
www.ttaconline.org

Virginia Association of Independent Schools
Organization that promotes educational, ethical and professional excellence through its school evaluation/accreditation program, attention to professional development and insistence on integrity. Search for member school on this site.
www.vais.org

Virginia Association of Independent Specialized Education Facilities
Association of Virginia private providers of specialized education services for children and youth with special needs, and their families. Search for schools and facilities on this site.
804-282-3592
www.vaisef.org
___________________________________________________________________________ Virginia Department of Education Useful Web pages
800-292-3820 • www.doe.virginia.gov/index.shtml

• Office of Special Education and Student Services
804-786-8079, Text Users Dial 711 (Virginia Relay)
www.doe.virginia.gov/special_ed/index.shtml

• Parent Ombudsman
Serves as a ‘designated neutral’ advocating for a fair process.
800-422-2083 • 804-371-7420
www.doe.virginia.gov/special_ed/resolving_disputes/ombudsman/index.shtml

• Guidelines for the Participation of Students with Disabilities in the Assessment Component of Virginia’s Accountability System
www.doe.virginia.gov/testing/participation/guidelines-for-assessment-participation.pdf

• Department of Education Mediation
Information provided by VADOE to help school personnel and parents contact mediators to attain assistance in resolving school services conflicts.
www.doe.virginia.gov/special_ed/resolving_disputes/mediation/index.shtml

• Office of Dispute Resolution and Administrative Services
Information about due process procedures and information.
804-225-2013
www.doe.virginia.gov/special_ed/resolving_disputes/index.shtml

• Special Education Advisory Committee
The State Special Education Advisory Committee (SSEAC) is organized and functions in accordance with state and federal requirements. The Committee’s functions include the following:
• Advise the local school division of needs in the education of children with disabilities;
• Participate in the development of priorities and strategies for meeting the identified needs of children with disabilities;
• Submit periodic reports and recommendations regarding the education of children with disabilities to the division superintendent for transmission to the local school board;
• Assist the local school division in interpreting plans to the community for meeting the special needs of children with disabilities for educational services;
• Review the policies and procedures for the provision of special education and related services prior to submission to the local school board; and
• Participate in the review of the local school division’s annual plan, as outlined in subdivision B.2. of this section.
www.doe.virginia.gov/boe/committees_advisory/special_ed/index.shtml

________________________________________________________________________

What Works Clearinghouse
Established by the U.S. Department of Education’s Institute of Education Sciences (IES) to provide educators, policymakers, researchers, and the public with a central source of scientific evidence of what works in education.
ies.ed.gov/ncee/wwc/

Virginia Family Special Education Connection
The goal of this website is to provide a one-stop-shop for parents, families and caregivers of children with special needs to: learn about and plan your child’s educational program, understand your legal rights and responsibilities, access local resources including school system contacts and disability services in your community and access an abundance of resources, including instructional strategies, assistive technology and behavioral supports to help your child succeed.
vafamilysped.org/home

EMERGENCY PREPAREDNESS

Disaster Preparedness for Pet/Service Animal
• ASPCA
www.aspca.org/pet-care/general-pet-care/disaster-preparedness
• Humane Society of the U.S.
www.humanesociety.org/issues/animal_rescue/tips/pets-disaster.htm

Disaster Safety for People with Disabilities
become “Red Cross Ready” for any urgent situation, which means assembling a survival kit, making an emergency plan, and being informed.
www.redcross.org/prepare/location/home-family/disabilities

Ready ~ Official website of the Department of Homeland Security
Prepare for Emergencies Now: Information for People with Disabilities
This guide provides tips which individuals with disabilities and others with access and functional needs, and the people who assist and support them, can take to prepare for emergencies before they happen.
www.ready.gov/individuals-access-functional-needs

Virginia Dept of Health Emergency Preparedness
Mission is to effectively respond to any emergency impacting public health through preparation, collaboration, education and rapid intervention. VDH Emergency Preparedness involves state, regional and local emergency response partners working together to enhance readiness to respond to all hazards, including bioterrorism, infectious disease outbreaks and other public health emergencies.
www.vdh.virginia.gov/oep

FINANCIAL AND LIFE PLANNING

The ABLE National Resource Center (ANRC)
Collaborative whose goal is to provide consistent, reliable information concerning the benefits of an ABLE account. In addition, the ANRC aims to educate individuals with disabilities and their families, state government and legislatures, financial service companies and financial planners and attorneys – who focus on trust and estate planning – about ABLE’s potential positive impact on the lives of Americans with disabilities
ablenrc.org

ABLEnow
Save for today’s needs or invest for tomorrow in a simple, affordable and tax-advantaged account that won’t impact certain disability benefits. As the Virginia-sponsored ABLE program, there are special tax advantages for Virginians.
able-now.com

Commonwealth Community Trust
National nonprofit that administers affordable third party and self funded pooled special needs trusts. These trusts protect the beneficiary’s Supplemental Security Income (SSI) and Medicaid and will pay for a wide variety of expenses for the individual.
804-740-6930
www.commonwealthcommunitytrust.org

Personal Finance Guide for People with Disabilities
Page on Calculators.org to help figure finances, savings, retirement, etc.
www.calculators.org/savings/people-with-disabilities.php

HEALTH/MEDICAL

Adolescent Health Transition Project
A tool for teens to learn more about his/her general health and specific special health need and/or disability, how to access information and how to articulate knowledge of his/her condition with adult health care providers and others. Also helps parents know what their teen knows about his/her condition and therefore what gaps in knowledge and experience must be learned before the teen transitions to adult health care, work and independence. Available in Chinese, Korean, Russian, Spanish and Vietnamese.
depts.washington.edu/healthtr

American Academy of Pediatrics
Association dedicated to the health, safety and well being of infants, children, adolescents and young adults. Website contains links to many topics of interest.
www.aap.org

Care Connection for Children
Statewide network of centers of excellence for children with special health care needs (CSHCN) that provide leadership in the enhancement of specialty medical services; care coordination; medical insurance benefits evaluation and coordination; management of the CSHCN Pool of Funds; information and referral to CSHCN resources; family-to-family support; and training and consultation with community providers. Can search for local offices on this site.
www.vdh.virginia.gov/care-connection-for-children

Carilion Clinic
Not–for–profit health care organization based in Roanoke, Va. A comprehensive network of hospitals, primary and specialty physician practices, and other complementary services, works together to provide quality care close to home for nearly 1 million Virginians.
800-422-8482
www.carilionclinic.org

Children’s Hospital of Richmond
A resource and provider of specialized medical and therapeutic services to children and adolescents with temporary to lifetime needs. Pediatric specialty services offered at hospital’s main location, two Richmond area Therapy Centers, and a Fredericksburg Therapy Center. Inpatient and outpatient services include physical, occupational and speech/language therapy, and family-centered, team-based programs led by physician specialists. Services include programs for rehabilitation, developmental pediatrics, subacute care, orthopedics, neurology, urology, cerebral palsy, spina bifida, muscular dystrophy, feeding disorders, dental care and more.
804-828-CHOR (2467)
800-828-1120 TDD via VA Relay Center
www.chrichmond.org

Children’s Hospital of The King’s Daughters
In addition to comprehensive and specialized care for newborns through teens, offers extensive psychosocial resources, including child life specialists, chaplains, schoolteachers, social workers, and parent and patient education programs. Specialities include but are not limited to: children’s cancer and blood disorders, cardiac surgery, children’s plastic surgery, child psychology, craniofacial center and services for asthma and allergies. Other services can be found on this site.
Norfolk
757-668-7000
www.chkd.org

Cleaner Indoor Air & Chemical Sensitivities Campaign
Strives to educate medical facilities, businesses and churches on how to create a less threatening environment for people who report allergic, immunologic, asthmatic and neurological reactions to perfumes, colognes, chemicals and synthetic fragrances. The Cleaner Indoor Air Campaign was launched by the Invisible Disabilities Association (IDA) in 2006. IDA is a 501(c)3 non-profit organization that reaches around the world to people touched by chronic illness, pain, injury and disabilities.
cleanerindoorair.org/about/about-cleaner-indoor-air-campaign

Cover Virginia
Learn about Virginia’s Medicaid and FAMIS programs for children, pregnant women and adults. You can also get information about health insurance options available through the Federal Marketplace. You can apply online or search for someone who can assist you with your application.
855-242-8282
888-221-1590 TDD
www.coverva.org

The Children’s Place at Lake Taylor Hospital
Provides services for children requiring longer-term hospitalization for illnesses or disabilities. Programs include rehabilitation therapies, pulmonary/ventilator care, full rehabilitation therapies, classroom programs for various levels of intellectual function and after school/weekend activities.
Norfolk
757-461-5001
www.laketaylor.com/pediatric-overview

Comprehensive Health Investment Project (CHIP) of Virginia/Families Forward
In 2017, Families Forward Virginia was created as a result of the merger of Prevent Child Abuse Virginia, CHIP of Virginia and Early Impact Virginia. Offers a practical example of taking a whole-family approach. This successful program – which pairs families with integrated teams of registered nurses and parent educators, goes beyond the usual focus on maternal and infant health.
www.familiesforwardva.org/chip-of-virginia

Cumberland Hospital for Children and Adolescents
Cumberland Hospital for Children and Adolescents serves children, adolescents and young adults ages 2-22. We offer programs and services designed for patients with impairment due to brain injury, chronic illness or neurobehavioral conditions with concurrent emotional and behavioral difficulties. Schooling and rehabilitative services are offered on-site and family involvement in treatment is encouraged.
New Kent • 804-966-2242
cumberlandhospital.com

Department of Medical Assistance Services
Provides a system of quality, comprehensive health services to members of Virginia’s low-income population as part of a safety net.
www.dmas.virginia.gov

Healthfinder
Developed by the U.S. Department of Health and Human Services together with other Federal agencies. Site links to carefully selected information and websites from over 1,500 health-related organizations.
www.healthfinder.gov

Got Transition?
In conjunction with the Center for Health Care Transition Improvement, aims to advance access to effective transition support from pediatric to adult health care for all youth, including those with special needs.
www.gottransition.org

HRSA Federal Health Care Information Center (Health Resources and Services Administration)
Works to improve health and achieve health equity through access to quality services, a skilled health workforce and innovative programs.
www.hrsa.gov/index.html

INOVA Fairfax Hospital for Children
Services provided at the Inova Fairfax Hospital for Children Specialty Center include: International Adoption Center, Craniofacial Program, Pediatric Kidney Center, genetics, Pediatric Heart Care, Pediatric Cancer Care, and the Pediatric Neuroscience Program.
www.inova.org/children

KidsHealth
Created by The Nemours Foundation’s Center for Children’s Health Media, website provides accurate, up-todate, and jargon-free health information about children from before birth through adolescence. Separate pages for kids, teens and parents.
www.kidshealth.org

Medline Plus
Extensive online database of articles and information from medical journals.
medlineplus.gov

National Center for Medical Home Implementation
Mission is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), and other partners and stakeholders to ensure that all children and youth, including children with special needs, have access to a medical home.
https://medicalhomeinfo.aap.org/Pages/default.aspx

Recallreport
Created to alert the public to the latest information on dangerous drugs and products that have been recalled or have a safety alert. Site includes A-Z searchable listings of products and companies with overview descriptions.
www.recallreport.org

University of Virginia Children’s Hospital
Encompasses a pediatric emergency department, a state-of-the-art Newborn Intensive Care Unit, an intensive care unit (PICU), acute care facilities, the Kluge Children’s Rehabilitation Center and an extensive network of primary and specialty care clinicians.
www.uvachildrenshospital.com

Virginia Association of Free Clinics
Community-based clinics providing health care at little or no charge to low-income, uninsured and underinsured persons through the use of volunteer health care professionals and partnerships with other health providers.
804-340-3434
www.vafreeclinics.org

Virginia Department of Health
Promotes the optimal health and development of Virginia’s children with special health care needs by working in partnership with families, service providers, and communities. Website includes Care Connection for Children Resource directory, which allows search for local and statewide resources on various medical conditions, advocacy and support groups, insurance, community support organizations and public and private agencies providing services for children with special health care needs.
www.vdh.virginia.gov

LEGAL

Bazelon Center for Mental Health Law
The nation’s leading civil rights organization representing people with mental illnesses or mental disabilities.
202-467-5730
www.bazelon.org

Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
Works with state and local education and early intervention systems, parent centers, families and educators to improve programs and results for children with disabilities, increasing capacity to effectively resolve special education disputes, thus reducing the use of expensive adversarial processes. Includes literature on dispute resolution in a Special Education annotated bibliography database.
www.cadreworks.org

ConsumerSafety.org
Strives to make information about recalls and safety-related news about drugs, medical devices, food, and consumer products accessible to everyone in a transparent, easily understandable way. Can search for drugs, medical devices, food and other products on this site.
www.consumersafety.org

Council of Parent Attorneys and Advocates, Inc.
Does not provide direct legal representation but ensures the availability and quality of legal and advocacy resources for parents of children with disabilities. Parents who are looking to find a special education attorney or a special education advocate may look up referrals in the COPAA Member Directory.
www.copaa.org

disAbility Law Center of Virginia
Mission is to advocate for and protect the legal rights of persons with disabilities. We work to fulfill this mission through education, training, and the promotion of self-advocacy skills for people with disabilities through information and referral services. We also provide direct advocacy services in particular cases that fall within our Strategic Goals and Focus Areas. However, due to limited resources, it is not possible for dLCV to provide legal services or direct representation to everyone who calls for assistance. Therefore, dLCV may provide information, written materials or limited technical assistance that will assist in self-advocacy.
800-552-3962
www.dlcv.org

Legal Services of Northern Virginia
LSNV is the largest legal aid organization in Northern Virginia, helping thousands of clients each year in civil legal matters. We partner closely with other legal aid organizations, state and local bar associations, as well as the courts to serve the region’s low-income and neediest populations.
703-778-6800
866-534-5243
www.lsnv.org

U.S. Department of Justice/Americans with Disabilities Act (ADA)
Information about the Americans with Disabilities Act (ADA) in regards to all aspects of life with disabilities.
800-514-0301
800-514-0383 TDD
https://www.ada.gov/2010_regs.htm

PublicLegal
A product of the Internet Legal Research Group (ILRG). A categorized index of more than 4000 select web sites as well as thousands of locally stored web pages, legal forms, and downloadable files, this site was established in 1995 to serve as a comprehensive resource of the information available on the Internet concerning law and the legal profession, with an emphasis on the United States of America. Designed for lay persons and legal scholars alike, it is quality controlled to include only the most substantive legal resources online.
www.ilrg.com

Virginia Office for Protection and Advocacy
Protects individuals with mental illness or other disabilities from abuse, neglect, discrimination and other violations of their legal or human rights. Callers with problems targeted in VOPA’s program priorities may also receive free advocacy services and/or free legal representation.
800-552-3962 V/TTY
804-225-2042 V/TTY
help.workworldapp.com/wwwebhelp/va_office_for_protection_and_advocacy_vopa_.htm

MISCELLANEOUS GROUPS/SERVICES

American Music Therapy Association
Music therapy interventions can be designed to improve the quality of life for children and adults with disabilities or illnesses.
www.musictherapy.org

Best Buddies Virginia/Capital Region
Provides opportunities for one-to-one friendships and events through the e-Buddies ®program.
703-533–9420
https://www.bestbuddies.org/capitalregion/

Friendship Circle of Virginia
Provides friendship and fun for children with disabilities and typical community teens while building an inclusive community, one friendship at a time through free community events and our Friends@home program.
804-740-2000 x4
www.friendshipcircleva.org

Formed Families Forward
Dedicated to supporting foster, kinship, and adoptive families of children and youth with disabilities and other special needs. Serves families, educators and child welfare professionals in the Northern Virginia area.
formedfamiliesforward.org

————————————–Support Groups for Kids /Teens
Many of the organizations listed throughout the Resource Section have specific sections and support groups for kids/teens – this is a very small sample.
• Supersibs –
For kids who have siblings who have cancer –
www.supersibs.org
• Slate Pals –
Pen pal program for blind Braille-reading students –
nfb.org/nopbc-slate-pals
• Children with Diabetes –
Meet other kids with diabetes from all around the world – www.childrenwithdiabetes.com/kids

Tele-Support Groups for Teens Who are Visually Impaired or Blind
Free Teen Tele-support Group is for high school juniors and seniors who are visually impaired or blind. Every week the group meets by phone to share experiences and ask questions of current college students and recent graduates who are also blind or visually impaired.
800-284-4422 — TTY 711
website

P. Buckley Moss Foundation for Children’s Education
Facilitates integration of the arts, in all its forms, into school curriculums, specifically addressing children who learn differently. Resources for teaching art to children with learning differences.
(804) 725-7378
(800) 430-1320
www.mossfoundation.org

Parent to Parent of Virginia
Through a network of volunteers, Parent to Parent of Virginia offers: emotional support and understanding; coping skills and a model of positive family integration of children with disabilities; information about services, support programs and advocacy organizations; and introduction and access to people and groups who share their concerns and interests and who can help meet their needs, as well as those of their children.
PTPofVA@aol.com
ptpofva.wordpress.com

The Sibling Support Project
National effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. Mission is accomplished by training local service providers on how to create community-based peer support programs for young siblings; hosting workshops, listservs, and websites for young and adult siblings; and increasing parents’ and providers’ awareness of siblings’ unique, lifelong, and ever-changing concerns through workshops, websites, and written materials.
www.siblingsupport.org

Virginia Art Therapy Association
Affiliated with National Art Therapy Association, organization of professionals dedicated to the belief that the creative process involved in art making is healing and life enhancing.
(804) 632-8696
www.vaarttherapy.org

Virginia Department of Social Services
Provides services that create and maintain a stable environment for Virginia’s children and families; promotes responsible parenting and establishes the infrastructure that allows for the delivery of services at the local level. See website for contact information for local offices.
General Information
800-552-3431
804-726-7000
www.dss.virginia.gov

PARATRANSIT
Editor’s Note: The list of paratransit options in Virginia was too big to list here. To find paratransit options in your county or city, perform an Internet Search with your location and the term PARATRANSIT

RECREATION
See also Camps and Recreation information located at the end of the section.
Be aware that most camps below are not operating or operating virtually during Covid.
As of June, 2022, several camp websites have not been updated. Contact individual camp to verify.

Accessible Playgrounds
www.accessibleplayground.net/united-states/virginia/

American Association of Adapted Sports Programs
Works in partnership with education agencies in the U.S. to establish programs, policies, procedures, and regulations in interscholastic adapted sports for students with physical disabilities to enhance educational outcomes.
www.adaptedsports.org

ArtStream
Artstream believes that through collaborative performance and lifelong learning opportunities, people with intellectual and developmental disabilities gain the skills and confidence to engage in the world. Artstream offer arts centered classes, workshops, socials, theatre companies, and cabarets to individuals with IDD’s and Autism virtually as well as LIVE in Virginia, D.C., and Maryland.
https://www.art-stream.org

Move United
Disabled Sports USA and Adaptive Sports USA are joining forces under the new name, Move United. The merger of Disabled Sports USA and Adaptive Sports USA unifies community-based adaptive sports under one national organization, bringing recreational and competitive adaptive sports together for the first time. This merger will make Move United an influential, prominent national organization which will lead to increased support and raised public awareness for our important work, leading to more opportunities for youth and adults with disabilities to be included and valued.
www.moveunitedsport.org/we-move-united

Increasing Physical Activity among Adults with Disabilities
Page on the Centers for Disease Control and Prevention website.
www.cdc.gov/ncbddd/disabilityandhealth/pa.html

Miracle League of Richmond
Offers accessible recreational opportunities for children with special needs so that they can participate in a team sport as a member of an organized baseball league.
www.ymcarichmond.org/community-programs/community-events/miracle-league/

National Center on Accessibility
Promotes access and inclusion for people with disabilities in parks, recreation and tourism. Based at Indiana University and established through a cooperative agreement with the National Park Service, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
812-856-4422
812-856-4421 TTY
www.ncaonline.org

The National Center on Physical Activity and Disability
Information about adaptive sports, adaptive exercise programs, videos and equipment, and recreational activities.
800-900-8086 V/TTY
www.ncpad.org

____________Camps and Recreational Opportunities
This information was gathered from various websites and lists already in existence. Although every effort was made to verify the information in these listings, we urge you to contact the camps directly to discuss the programs, fees, and availability of camperships and sliding fee scales. It’s also extremely useful to visit each facility you are considering for your child. There are certainly programs that we have missed. We encourage you to call your local Parks and Rec Department to see what opportunities are available.

Other Camp Locator Resources
• CampChannel • www.campchannel.com/campers/search
• Easter Seals • website
• Kids /Teen Summer Camps • www.allensguide.com

American Kidney Fund
Enables children with chronic kidney disease to attend summer camp. Provides financial aid for camp tuition, transportation or camping supplies.
800-638-8299
website

Camp Aristotle
Activities are carefully designed to foster friendships, self awareness, exploration, and social success. Many students experience challenges associated with Asperger’s Syndrome, high functioning autism, anxiety-related disorders, and ADHD; however, not all campers have a formal diagnosis. Students at Camp Aristotle may have trouble with peer relationships and/or impulse control. Accepts rising Kindergarten through 9th grade (11th grade at our Herndon Campus).
www.theauburnschool.org/domain/51

Arlington County Dept of Parks, Recreation and Community Resources
Provides specialized recreation services/programs around prevention and intervention to meet identified needs not met through traditional recreation programs.
703-228-4740 • 711 TTY
Website

Camp Ability
Virginia Beach
Cerebral Palsy of Virginia provides summer activities such as computer software games, art and crafts projects, daily field trips to museums, bowling and the movies.
757-497-7474
www.abilitycenterva.org/camp-ability.html

Camp Baker
Chesterfield
Residential and day programs offered by the Richmond ARC for adults and children with moderate to profound intellectual disabilities, include swimming, music, hiking, arts, and crafts, horseback riding and canoeing. Camp Baker’s Day Support program operates year round providing services to adults with intellectual disabilities, age 21 and older. Additionally, the program offers year-round weekend respite care for families.
804-748-4789
www.soar365.org/summer-camp

Camp Bruce McCoy
Chesapeake
Offered by the Brain Injury Association of Virginia, this is a one-week camp for adult (over 18) survivors of brain injuries.
804-355-5748
www.biav.net/?s=summer+camp

Camp Easterseals UCP in Virginia
Camping activities for people with physical and cognitive disabilities, designed to offer the opportunity to enjoy fun and challenging activities in a supportive and cooperative atmosphere.
540-777-7325
websit e

Camp Special Love
Virginia locations
Camp experiences for children 7-17 who are within 3 years of their last cancer-specific treatment (or within 5 years of a bone marrow transplant). Also offers camps for friends and siblings.
540-667-3774
https://specialove.org

Camp Holiday Trails
Charlottesville
Provides ages 7-17, with special medical needs and/or chronic health problems an opportunity to enjoy the summer camp experience.
434-977-3781
www.campholidaytrails.org

Camp Kesem at The University of Virginia
Charlottesville
Week-long sleep away camp for children who have or had a parent with cancer that provides a safe, nurturing and fun environment.
Website not currently working but leaving posted her for the future
https://www.kesem.org/programs-services/camp-kesem

Camps posted on Consortium on Children’s Asthma Camps
• Camp Superkids-Winchester – Day Camp for ages 6-8 Overnight Camp for ages 8-12 • website
• Camp Incredible- Day camp for children, ages 6-12 years old. Activities are designed to promote self care, self image, and independence for children with asthma. Well supervised by health care professionals. Registration required. www.centralvirginiaasthma.org
• Roanoke Camp Catch UR Breath • Roanoke • Three-day, day camp with activities, education, and meals provided. Very well supervised by health care professionals with excellent camper/volunteer ratio. • www.asthmacommunitynetwork.org/node/16251
www.asthmacamps.org/index.cfm

Central Virginia Burn Camp
Charlottesville
Residential summer camp for young burn survivors designed to meet their social, physical, and psychological needs. The camp is free to children between the ages of 7 & 17.
434-263-6566
www.vaburncamp.org

Challenger Baseball
Little League Baseball Inc., baseball/ tee ball program offers youths who have mental and physical disabilities a chance to play in a league. Each player is assigned a “buddy” who stays with them through the entire practice and weekend game. Contact your local little league division.
www.littleleague.org/learn/about/divisions/challenger.htm

Charlottesville Adaptive Recreation
For individuals, ages 8 and up, with physical and or mental disabilities whose recreational needs cannot be met by regular programs. The goals of the activities are to improve self-esteem, health, social skills, recreation skills, safety skills, and independence while having fun.
434-970-3264
www.charlottesville.gov/368/Adaptive

Chesapeake Parks and Recreation
Certified Therapeutic Recreation Specialists are dedicated to maintaining an atmosphere which promotes leisure awareness, social interaction, and personal achievement with the goal that recreation can enhance health, independence and quality of life.
757-382-1328
website

Chesterfield County Parks and Rec Dept
Offers a variety of programs that change from year to year, but usually include activities such as summer day camps, golf, challenge/ropes course, bowling, Special Olympics, therapeutic horseback riding, sign language classes, arts and crafts, and other therapeutic and inclusive recreation programs.
804-748-1623
Website

City of Alexandria Dept of Recreation, Parks and Cultural Activities
Among the programs offered: eight weeks of summer fun for children with physical, cognitive and developmental disabilities. Day Camp activities include swimming, field trips, sports, games and more. Qualified staff members with therapeutic recreation, special education or other related backgrounds, supervise campers.
703-746-5422
Website

Civitan Acres Summer Vacation Program
Provides eight fun-filled weeks of activities for participants of varying abilities. From trips to Kings Dominion to days at the beach – from afternoons by the pool to excursions to the aquarium and for ice cream, our participants enjoy a wide array of activities in an overnight setting that is a true “camp” experience!
757-625-2044
www.egglestonservices.org/support-services/summer-camp-at-civitan/#0

Danville, Parks & Recreation Stonewall Therapeutic Recreation Center
Provides opportunities for individuals with disabilities to explore self and community through recreation and leisure activities. The staff strives to address the physical, social, emotional and cognitive needs of participants.
434-799-5199
Website

Fairfax County Therapeutic Recreation
Provide opportunities for children and adults with disabilities so they may acquire the skills that enable them to participate in the recreation and leisure programs of their choice. Staff is committed to providing services, education, and resources that meet participants’ interests, needs, and abilities. Staff also provides support and advocacy to individuals who wish to participate in general recreation activities.
703-324-5532 • 711 TTY
www.fairfaxcounty.gov/ncs/trs/

Hanover County Parks and Recreation Youth Summer Programs
Arts, theater, active play or adventure. With different tracks to choose from, their entire week will focus on that particular interest and skill set. For rising 1st – 6th graders. Individuals needing extra assistance must make arrangements with a Therapeutic Recreation Aid. Application found on site.
(804) 365-7150
www.co.hanover.va.us/Parks-and-Rec/Summer-Youth-Programs/

Henrico County Therapeutic Recreation
Classes, clubs, field trips, workshops and special events for families of children and adults with developmental disabilities, emotional disabilities and special health care needs.
804-501-7275
henrico.us/rec/

James City County Division of Parks and Recreation
Provides leisure opportunities and recreation programs, which are open and accessible to all citizens in the county regardless of mental or physical ability.
757-259-3200
https://jamescitycountyva.gov/3124/Inclusion-Therapeutic-Recreation

Jewish Community Center of Northern Virginia Summer Camp
Provides summer programming for children with special needs, including high-functioning autism, Asperger’s syndrome, and ADD/ADHD.
Fairfax • 703-323-0880
Website

Jill’s House Weekend Adventures
Provides an unforgettable two-night camp experience tailored specifically for kids with intellectual disabilities, ages 6-17. Offers camps in Virginia, Tennessee, Seattle, and Chicago. Join us for archery, low ropes courses, zip lines, s’mores, dance parties, and more.
https://www.jillshouse.org/summer-camp-for-child-with-special-needs

Loudoun County Parks & Recreation
Provides recreation programs and day camps for children and adults with varying degrees of special needs including:
Adaptive Recreation Summer Camp and VSA arts of Virginia-Loudoun County
703-777-0100
website

Muscular Dystrophy Assoc. Summer Camp
Each camp provides a wide range of activities especially designed for young people who have limited mobility or use wheelchairs. Accessible activities range from outdoor sports such as swimming, boating, baseball, football and horseback riding, to less physically demanding programs like arts and crafts and talent shows.
www.mda.org/services/mda-summer-camp

Newport News Recreation
Provides a wide range of recreation programs and leisure opportunities for children and adults.
757-926-1400
www.nngov.com/660/Parks-Recreation-Tourism

Norfolk Dept. of Parks Therapeutic Recreation Center
Hampton Roads Area
Programs utilize recreation to help individuals with temporary impairments, health conditions, and disabilities to increase independence, strengthen leisure skills, and enhance personal well being – physically, cognitively, emotionally, and socially in a rehabilitative environment.
757-441-1764
www.norfolk.gov/Facilities/Facility/Details/87

Path International
Organization that promotes the benefit of the horse for individuals with physical, emotional and learning disabilities. Call or click to locate a participating riding program near you.
800-369-RIDE (7433)
www.pathintl.org

Special Olympics Virginia
Year-round program of sports training and athletic competition for children and adults with intellectual disabilities. Website has listings of local offices/locations.
State Headquarters/ Central Virginia Office
Richmond • 804-346-5544 • 800-932-GOLD (4653)
www.specialolympicsva.com

Sportable
Organization focused on providing recreation and sports opportunities for individuals with physical disabilities in the Richmond area.
804-340-2991
https://sportable.org

Therapeutic Adventures
Charlottesville
Committed to providing greater access to adaptive outdoor recreation for persons of all ages who have a disability (physical or developmental), a chronic illness, or other special health needs. With the goal to improve the quality of life of all persons, the integrative approach to adaptive outdoor recreation consists of Adaptive Water Sports, Adaptive Snow Sports, and Adaptive Wilderness Sports.
434-981-5834
www.TherapeuticAdventures.org

Virginia Beach Department of Parks and Recreation Therapeutic Recreation Services
Offers a variety of activities for all ages, including opportunities in community recreation participation, swimming, after school activity, fitness programs, and summer day programs.
website

Virginia Youth Soccer Association
The Outreach Program (TOPSoccer) under the auspices of United States Youth Soccer (USYS), is designed to enrich the lives of children with mental and/or physical disabilities through the game of soccer. Local programs can be found on website.
www.vysa.com/Default.aspx?tabid=2519886

Voices Together Camp
Structured, integrated recreational day camp for children and teens with autism.
Richmond
804-285-6500
www.weinsteinjcc.org/summer-camps/voices-together

RESPITE
Includes information about caregiving
See also Community Service Board information above.
Resources listed under Child Care may also be helpful.

Caregiver Action Network
Serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.
caregiveraction.org

Community Direct Services, Inc.
Provides skills, training, assistance, and support to individuals with mental an/or physical disabilities so they can maintain their personal dignity and continue to live as independent citizens in the community. Mental Health & Home Care services will begin in 2017. Licensed based community supports include: In Home Residential, Supported Residential, Sponsored Placement Residential, Companion, Respite and Personal Assistance
757-965-4899
communitydirectservices.com

Family Caregiver Alliance
Supports and sustains the important work of families nationwide caring for loved ones with chronic, disabling health conditions.
800-445-8106
www.caregiver.org/caregiver/jsp/home.jsp

Jill’s House
Provides a safe, fun place for children with special needs while giving their parents and caregivers time to rest and recharge. To ensure that parents and caregivers get a real break, typical siblings are welcome as well.
McLean
703-639-5660
jillshouse.org

McLean Bible Church
Offers respite care with a Christian perspective for children with special needs living at home, from infants to young adults, along with their siblings. Activities include music, crafts, movies and games.
703-770-2942
www.mcleanbible.org/connect/access

National Alliance for Caregiving
Coalition of national organizations focusing on advancing family caregiving through research, innovation and advocacy. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, government agencies, and corporations.
www.caregiving.org

National Respite Locator Service
Helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs.
https://archrespite.org

SCHOOLS
–Includes Residential Facilities.
See also Educational Resources information above.
Contact individual schools for further information including accreditation details. Many of the facilities listed may also offer summer camps and programs and/or residential services. Generally speaking, the schools listed here accommodate 20 or more students.
Only schools located in Virginia are listed here.s

For a more complete listing of Virginia facilities please visit www.vaisef.org or Private Special Education Day Schools Directory. This list may also include residential facilities that have schools on site.

Accotink Academy Therapeutic Day School
Serves ages 6-21 who are referred for special education accommodations to address learning and/or emotional disabilities. Instruction is individualized and instructional materials and methodology are equated with the learning style and developmental needs of the students.
Springfield, • 703-451-8041
www.accotink.com

Alternative Paths Training School
Educational/vocational program that provides students, ages 6-22 with developmental and other disabilities, with the knowledge and practical skills essential for successful integration into the community.
Alexandria Campus • 703-766-8708
Fredericksburg Campus • 540-373-8760
Manassas Campus • 703-365-7494
Stafford Campus • 540-479-1701
www.aptsinc.org

Auburn School
Supports the social and academic potential of bright students with social and communication challenges. Program simultaneously supports the development of academic skills, social competency and pragmatic language in an engaging educational environment. Rolling Admission grades K-11.
Chantilly • 703-793-9353
https://theauburnschool.org/about/

(ARC of Loudoun) Paxton Campus
Founded by parents in cooperation with The Arc of Loudoun, serves students, ages 5 – 22 with the disability categories of autism, developmental delay, multiple disabilities, other health impairment, severe disabilities, speech language impairment, and traumatic brain injury. Verbal behavior, academic literacy, reading, social skills, self-management and problem-solving skills are taught via well researched, commercially available scripted curricula, as well as curricula developed in-house by teachers and behavior analysts.
Lessburg • 703-777-1939
www.paxtoncampus.org

The Barry Robinson Center
Services include residential treatment services, in-home services, therapeutic foster care, emergency foster care, independent living and prevention services. A multidisciplinary team approach is used to serve children and adolescents who are experiencing emotional disturbances and impairment of social, interpersonal and educational functioning.
Norfolk • 800-221-1995
www.barryrobinson.org

Blue Ridge Autism and Achievement Center
Mission is to serve children and families who are faced with unique learning challenges, specifically autism and learning disabilities, in and around the Roanoke Valley.
Roanoke • 540-366-7399
Lexington • 540-366-8320
Lynchburg • 434-525-4790
braacroanoke.org

Boys’ Home, Inc.
Residential/educational setting for school-age males providing educational, vocational, socialization services.
Covington • 540-965-7700
boyshomeofva.org

Charterhouse School
Affiliated with United Methodist Family Service, provides specialized education services to youth 6-22 years of age who struggle to function in their current school setting in the greater Richmond area.
Richmond • 804-239-1080
Edinburg • 540-984-6266
www.charterhouseschool.org

Chesapeake Bay Academy
Mission is to educate students, including those with learning and attention disorders, whose potential may only be realized through an individualized academic program and to empower students to transition successfully from the separate lower, middle and upper school divisions to the next most appropriate educational setting.
Virginia Beach • 757-497-6200
www.cba-va.org

Commonwealth Academy
Offers a college prep curriculum for bright to average students in grades 3-12 with learning differences and who will benefit from small classes. Rich in state-of-the-art technology, the program offers individualized accommodations so students can achieve at grade level or higher.
Alexandria • 703-548-6912
www.commonwealthacademy.org

Dominion Academy
A therapeutic day school for special education children, ages 5-22 who are in need of a smaller school setting due to a lack of success in a large public school environment. Students typically have an Individual Education Plan (IEP) from their home school division. The student’s home county Children’s Services Act (CSA) and Family Assessment and Planning Team (FAPT) typically provides funding for school tuition and fees for special education students
Richmond • 804-266-9012
Tidewater • 757- 630-5167
dominionyouthservices.com/services/private-day-school/

East End Academy
Programs are designed to meet the developmental, academic, social and emotional needs of students in grades K-12 with the primary handicapping condition of serious emotional disabled (SED), in a positive learning environment.
Newport News • 757-247-0039
www.eastendacademy.com

Elk Hill
Provides students with an individualized education, vocational training, and a continuum of counseling and therapeutic services, including partnering with local schools to provide one-on-one classroom support and interventions.
Charlottesville Day School • Charlottesville • 434-220-7198
Harambee Day Program • Goochland • 804-457-4866
Staunton • 540-569-2058
https://elkhill.org

The Faison School for Autism
Provides services on-site from early intervention through school age and intensive programming for children and young adults diagnosed with an autism spectrum disorder. In addition, the school offers a variety of consultative services, including home-program support, school consultation, after-care and summer programs and community workshops.
Richmond • 804-612-1947
Newport News • 804-612-1947
www.thefaisonschool.org

Gladys H. Oberle School
Serves students ages 11 up to 22 with Serious Emotional Disturbance, Learning Disability, Autism, Intellectual Disability, and Other Health Impairments, who are functioning behind grade level and/or lack the social skills necessary to succeed in the public school setting. ERI also provides workforce training programs for youth up to the age of 22 through the Workforce Investment Act (WIA), as well as training services for adults.
Fredericksburg • 540-372-6710
www.eri-va.com

Grafton School, Inc.
Associated with Grafton Integrated Health Network, provides services for ages 6-21 with autism, intellectual and cognitive disabilities, psychiatric conditions,and developmental disorders.
888-955-5205
Winchester • 540-542-0200
Berryville • 540-955-2400
Richmond • 804-674-8888
www.grafton.org

HopeTree Academy
Provides a school setting for those in the Residential Care Program whose emotional and/or educational needs require an alternative school in order to succeed.
Salem • 540-389-5468
hopetreefs.org/childrens-youth-services/hopetree-academy/

Hughes Center
Residential treatment facility and day school in Danville, Va., that serves young men and women diagnosed with an intellectual disability or any Pervasive Developmental Disorder, including Autism Spectrum Disorder and Asperger Syndrome. With the goal of learning how to be successful in their home, school and community.
Danville • 434-836-8500 • 888-54-HUGHES
thehughescenter.com

Kellar School
Therapeutic education program serving grades 3 – 12, who have been identified as being eligible for special education services. Designed to meet the needs of students with emotional and/or learning disabilities. These students may also have social, behavioral or health-related issues that significantly interfere with their ability to learn.
Fairfax • 703-218-8500
www.inova.org/healthcare-services/inova-kellar-center/kellarschool.jsp

Lafayette School & Treatment Center
Serves children and adolescents (grades K-12) with diagnosis of emotional disturbance, behavioral disturbance, and/or mental illness, in a structured special education and treatment program.
Charlottesville • 434-589-2370
www.lafayette-school.org

Little Keswick School
Therapeutic residential facility serving boys, ages 9-15 at time of admission. Provides a structured environment to give students with emotional and self-regulation issues, language-based and non-verbal learning disabilities, ADHD or Asperger’s and similar developmental disorders, opportunities to learn, grow, and thrive.
Keswick • 434-295-0457
www.littlekeswickschool.net

Matthew’s Center
Provides children (ages 5-21) who have autism and related disabilities, with the foundation and skills required to function successfully and independently in his/her environment.
Manassas • 703-369-2976
https://matthewscenter.org

Minnick Education Centers
Associated with Lutheran Family Services of Virginia, (lfsva.org) students are referred to Minnick Education Centers by their home school districts through the local Family Assessment and Planning Teams (FAPT) with the consent of the parents or legal guardians. Students are provided with the opportunity, encouragement, and professional services to meet their educational and emotional needs. See website for locations in Virginia.
https://www.encircleall.org/about/locations

The New Community School
Serves children with specific learning disabilities in grades 6-12. Program includes both remediation of language skills and academic challenge appropriate for students of average to above-average intellectual potential.
Richmond • 804-266-2494
www.tncs.org

New Vistas School
Provides an individualized instructional program for students, grades K-12, with learning and attention differences, as well as the associated emotional difficulties that often accompany these challenges.
Lynchburg • 434-846-0301
www.newvistasschool.org

Northstar Academy
Serves children in grades K–12, with learning differences, who have demonstrated difficulty learning in traditional school settings with traditional teaching methods.
Richmond • 804-747-1003
www.northstaracademy.net

Oakland School
Boarding and day school for children ages 6-13 with learning disabilities including dyslexia, dysgraphia, dyscalculia, non-verbal learning disabilities or visual and auditory processing disorders. The program also is well-suited to those with ADHD or organizational difficulties.
Troy • 434-293-9059
www.OaklandSchool.net

Oakwood School
Day school that provides a multisensory educational program in which students with learning differences are guided to achieve their unique academic and social potential in a nurturing community environment.
Annandale • 703-941-5788
www.oakwoodschool.com

Phillips Program
A K-12 day school serving children with multiple disabilities, behavioral problems, emotional difficulties, learning disabilities, intellectual disabilities or autism. Client’s county of residence usually makes referrals for this program.
Annandale • 703-941-8810
Fairfax • 703-591-1146
Leesburg • 703-669-0740
www.phillipsprograms.org

Rivermont Schools
Programs designed for students who cannot participate in regular school programs due to psychological problems, emotional difficulties or learning disabilities, but who do not require inpatient treatment. Search map on website for locations across the state.
434-200-3000
www.centrahealth.com/services/rivermont-schools-special-education

Riverside School, Inc.
Dedicated to providing a teaching approach which is specifically designed to meet the educational needs of students in grades K-8 with dyslexia and similar language-based differences. Small classes, individualized curriculum, one-on-one instruction, and a nurturing environment.
Richmond • 804-320-3465
www.riversidescool.org

Specialized Youth Services of Virginia, Inc.
Provides a continuum of community based services to include in-home counseling, and day treatment services as well as an alternative educational program for identified students, ages 6-18 in grades K-12 who are unable to succeed in programs available within public schools, but who do not require a more restrictive residential program.
Petersburg • 804-733-2180
www.sysva.com

St. Joseph’s Villa
Working with Richmond local school systems and parents, the Villa provides a variety of educational services to children with special needs. Education programs (and the clients they serve) include:
~Dooley School – P(K-12) primarily serves stuhttps://viacenters.org/via-schooldents diagnosed with emotional disabilities, specific learning disabilities, autism spectrum disorder, intellectual disabilities and other health impairments. Staff-to-student ratio ranges from 1:6 to 1:8 depending on disabilities being served in the classroom.
~Dooley Center for Alternative Education – For students who have been suspended or expelled from their local high school. 804-553-3265
~Brook Road Academy, a nontraditional, college-prep high school. 800-273-6553 • 804-553-3200
www.neverstopbelieving.org/services/education-services/

Timber Ridge School
Residential treatment and accredited educational program serving young men, ages 10-21, with a history of serious emotional, learning, and behavioral difficulties. School is in session for 12 months each year. In the summer months, students can enroll in educational classes to make up deficiencies from prior years. They may also take classes to meet requirements for fine arts credits and other electives.
Cross Junction
540-888-3456 • 877-877-3004
www.timberridgeschool.org

Virginia Home for Boys and Girls / Educational Services
Day and residential programs with specialized alternative education for students in grades 6-12. The curriculum also allows students to undertake independent study; i.e., GED preparation or online classes for high school credit.
Henrico • 804-270-6566
vhbg.org

Virginia Institute for Autism – James C. Hormel School
Program utilizes teaching procedures based on the principles of ABA and makes use of specialized teaching strategies, which address the unique learning characteristics of students with autism. When appropriate, students transition into mainstream classrooms in public and private school settings with a VIA transitional coach.
Charlottesville • 434-923-8252
https://viacenters.org/via-school

Youth For Tomorrow
Residential and Day school that provides at-risk children who live outside their homes a stable, supportive educational environment. Enrichment programs – including after-school tutoring, recreation, information technology, the arts, and clinical therapy– are offered.
Bristow • 703-368-7995
youthfortomorrow.org/Home

SERVICE AND THERAPY ANIMALS

Autism Service Dogs of America
Specializes in placing dogs that are specifically trained to assist individuals with challenges of autism.
www.autismservicedogsofamerica.com

Canine Companions for Independence
Provides highly trained assistance dogs and ongoing support.
800-572-BARK (2275)
www.cci.org

Commonly Asked Questions About Service Animals In Places Of Business
This Q & A is reprinted from
www.ada.gov/regs2010/service_animal_qa.html

Fidos for Freedom
Organization has a number of programs which directly involve the training and utilization of dogs in service and therapy. The Client Services Program deals with individuals who have either mobility or hearing challenges. The Training Program provides puppy raising, skilled training for service dogs, and continuing education for the dog and client teams. The Therapy Dogs Program focuses on the training, development, and implementation of therapy dog teams in nursing homes, hospitals, cancer care settings, and the DEAR program – Dogs Educating and Assisting Readers, which provides specially-trained therapy dogs to school and library reading programs.
https://fidosforfreedom.org

Guiding Eyes for the Blind
Provides training for blind persons who have additional disabilities, such as hearing loss or orthopedic problems.
800-942-0149
www.guidingeyes.org

Guide Horse Foundation
Provides miniature horses as an alternative mobility option for people who are blind.
guide-horse.org

Helping Hands: Monkey Helpers
Places specially trained capuchin monkeys with people who are paralyzed, or who suffer other severe mobility impairments.
www.monkeyhelpers.org

Leader Dogs for the Blind
Helps the visually impaired enhance their quality of life by providing the means for safe and independent travel.
888-777-5332
248-651-3713 TTY
www.leaderdog.org

National Capital Therapy Dogs, Inc.
Provides training and socialization for participating dog and handler teams to assure patient safety and quality therapy. Also promotes animal-assisted activity and therapy concepts and provides public education and exposure.
www.nctdinc.org

Lift Me Up!
Therapeutic riding program
Great Falls • 703-759-6221
www.liftmeup.org

Professional Association of Therapeutic Horsemanship International (PATH Intl.) Organization that promotes the benefit of the horse for individuals with physical, emotional and learning disabilities. Call or click to locate a participating riding program near you.
800-369-RIDE (7433)
www.pathintl.org

Saint Francis of Assisi Service Dog Foundation
Trains service dogs to help qualified persons with physical and/or emotional disabilities which substantially alter one or more major life activities.
Roanoke • 540-342-3647
www.saintfrancisdogs.org

Service Dogs of Virginia
Raises, trains and places dogs to assist people with disabilities.
Charlottesville • 434-295-9503
servicedogsva.org/

Simple Changes Therapeutic Riding Center
Provides equine assisted activities to children and adults with physical, cognitive and emotional challenges. We also assist warriors in transition and work with youth-at-risk from local schools.
Lorton• 703-402-3613
www.simplechanges.org

Disaster Preparedness for Pet/Service Animals
www.aspca.org/pet-care/general-pet-care/disaster-preparedness
www.humanesociety.org/issues/animal_rescue/tips/pets-disaster.html

_______________Websites that assist or provide information to travelers who have mobility and/or other issues and who wish to bring their service animals along.

• PetTravel.com
Information regarding all types of traveling with service animals and includes a directory of pet-friendly hotels.
www.pettravel.com

• National Service Animal Registry (NSAR)
Since 1995, National Service Animal Registry (NSAR) has actively trained, facilitated, and worked with service dogs, emotional support animals, therapy animals, and drug detection animals.
www.nsarco.com/airlines.html

•American Airlines Service Animal Policies
Helpful information regarding traveling with a service animal on American Airlines.
www.aa.com/i18n/travelInformation/specialAssistance/serviceAnimals.jsp

•United Airlines – Traveling with Service Animals
Find general information about traveling with your service animal.
website

• International Association of Assistance Dog Partners
Information to enable disabled persons who want to travel with a guide, hearing or service dog to become more familiar with the U.S. Government’s rules and policies governing the transportation of service animals in the plane cabin.
www.iaadp.org/airline.html

• Travelling with A Service Dog – Service Dogs and More
Site appears to have not been updated for several years but provides useful travel preparation and advocacy information.
sdog.danawheels.net/travel.shtml

• Greyhound Buslines
General information for customers with diabilitites including use of service animals.
www.greyhound.com/en/help-and-info/travel-info/customers-with-disabilities

• Amtrak Service Animals and Pet Policy
General information for customers.
www.amtrak.com/service-animals

TRANSITION/ADULTHOOD
Includes information on best practices, employment,
day support and residential options

AbilityOne Program
Creates jobs and training opportunities for people who are blind or who have other severe disabilities, empowering them to lead more productive and independent lives. Its primary means of doing so is by requiring government agencies to purchase selected products and services from nonprofit organizations employing such individuals.
800-999-5963
www.AbilityOne.gov

Association for Persons in Supported Employment
Supports Employment First to facilitate the full inclusion of people with disabilities in the workplace and community.
www.apse.org

Career Support Systems
Promotes independence and self-sufficiency by delivering an array of community based employment supports. CSS supports a variety of customers in community-based settings, including people with mild to severe disabilities, people with economic challenges (for example TANF Recipients) and people with medical concerns.
804-261-6788 • 877-889-1727
www.careersupport.net

Community Systems Inc.
A family of non-profit corporations whose mission is to help persons with disabilities find happiness in their own homes, in their personal relationships, and as contributing members of society.
Fairfax • 703-913-3150
www.communitysystems.org

Didlake, Inc.
Service integrates individuals with disabilities into community through a combination of community integration, classroom instruction, therapeutic services, and pre-vocational training.
703-361-4195
866-361-4195
www.didlake.org

Eggleston
Dedicated to educating, training and employing individuals with disabilities. Goal is to help people obtain meaningful work opportunities and participate fully in their communities.
Norfolk
757-858-8011
www.egglestonservices.org

The Employment and Disability Institute (EDI)
Advances knowledge, policies, and practices to enhance the opportunities of people with disabilities through projects, training, technical assistance, research, and publications.
website

ENTRY POINT!
Program of the American Association for the Advancement of Science (AAAS) offering outstanding internship opportunities for students with apparent and non-apparent disabilities in science, engineering, mathematics, computer science, and some fields of business.
202-326-6649
ehrweb.aaas.org/entrypoint

Gladys H. Oberle School
Provides workforce training programs for youth up to the age of 22 through the Workforce Investment Act (WIA), as well as training services for adults.
Fredericksburg • 540-372-6710
www.eri-va.com

HEATH Resource Center
A national clearinghouse that provides information on post-secondary education and related issues for individuals with learning disabilities.
www.heath.gwu.edu

HopeTree Family Services
Mission is to provide Christian residential, educational, and support services to at-risk children and youth, and to adults with intellectual disabilities throughout Virginia.
Salem • 540-389-2112
hopetreefs.org

mikeroweWORKS Foundation
Promotes hard work and supports the skilled trades in a variety of areas. Awards scholarships to men and women who have demonstrated an interest in and an aptitude for mastering a specific trade. The Foundation’s focus is on supporting the specific skilled trades that help close the Country’s skills gap.
profoundlydisconnected.com/foundation

The National Center on Secondary Education and Transition
Seeks to increase the capacity of national, state and local agencies and organizations to improve secondary education and transition results for youth with disabilities. See link to the Youthhood.org website, a curriculum-based tool that can help young adults plan for life after high school.
www.ncset.org

The National Collaborative on Workforce and Disability for Youth
Assists state and local workforce development systems to better serve all youth, including youth with disabilities and other disconnected youth. Funded by a grant from the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP), NCWD/Youth is managed by the Institute for Educational Leadership in Washington, D.C. NCWD/Youth offers a range of technical assistance services to state and local workforce investment boards, youth councils and other workforce development system youth programs.
877-871-0744 • TTY: 877-871-0665
www.ncwd-youth.info

National Resource Center for Supported Decision-Making
Brings together varied partners to ensure that input is obtained from all relevant stakeholder groups including older adults, people with intellectual and developmental disabilities (I/DD), family members, advocates, professionals and providers. The NRC-SDM partners bring nationally recognized expertise and leadership on SDM, representing the interests of and receiving input from thousands of older adults and people with I/DD. They have applied SDM in groundbreaking legal cases, developed evidence-based outcome measures, successfully advocated for changes in law, policy and practice to increase self-determination and demonstrated SDM to be a valid, less-restrictive alternative to guardianship.
www.supporteddecisionmaking.org/state-review/virginia

National Youth Leadership Network
Serves as an online clearinghouse/library/archive of curriculums, training guides, and empowerment tools created by and for young leaders. We developed these resources based on first-hand expertise in areas such as continued education, career development, active community participation, independent living, personal relationships, world travel, and more.
nyln.org

St. John’s Community Services
Provides a variety of community-based services for children, youth, adults and seniors with intellectual, developmental and other disabilities.
Virginia Location – Annandale • 703-914-2755
www.sjcs.org

ServiceSource
Providing employment and support services to people with disabilities and a valuable labor force to local commercial businesses and government agencies
Virginia Regional Office – Employment and Rehabilitation Services
Alexandria • 703-461-6000
Virginia Regional Office – Habilitation Services, Central Fairfax
Springfield • 703-354-0900
www.servicesource.org/services-by-state/virginia

SPecially Adapted Resource Clubs (SPARC)
An innovative clubhouse model supporting young adults with life-long physical and/or developmental disabilities. SPARC supports club members as they continue life-skills development with an added component of entrepreneurial projects and enrichment activities such as music and art therapies.
703.338.6185
Arlington • Fairfax • Reston • McLean
sparcsolutions.org

SourceAmerica
A leading source of job opportunities for a dedicated and highly qualified workforce – people with significant disabilities. Through their work, they make the American Dream more accessible to a segment of the population.
www.sourceamerica.org

Social Security Administration Ticket to Work Program
Serves beneficiaries receiving SSI or SSDI who are age 18 or older and have not reached age 65. The program is completely voluntary, and eligible youth will automatically receive a Ticket in the mail upon reaching age 18 and remaining on SSI or SSDI after their first Continuing Disability Review under adult criteria.
www.socialsecurity.gov/work/

Travel Accessibility and Tips for Travelers with Disabilities
Informational page on commercial site that is very helpful.
http://www.titlemax.com/travel-accessibility-and-tips-for-travelers-with-disabilities/

Virginia Association of Community Rehabilitation Programs
Statewide association of organizations providing quality employment, residential, day support, training, and support services for persons with disabilities.
571-339-1305
877-877-2777
www.vaaccses.org

Virginia Department of Aging and Rehabilitative Services (DARS)
Created by merging the former Department of Rehabilitative Services and Department for the Aging. In 2013, the adult services units from Virginia’s Department of Social Services became part of DARS. The merger provides and advocates for the highest quality of services to help older Virginians and those with disabilities to maximize and secure their employment, independence and full inclusion into society and guide the Commonwealth in preparing for an aging population
804-662-7000
800-552-5019
800-464-9950 TTY
804-325-1316 Videophone
www.vadars.org

Virginia Association of Centers for Independent Living
Statewide association of Centers for Independent Living (CILs) that advocates for the integration and inclusion of people with disabilities into all aspects of society. The association also promotes the professional development, improvement, and expansion of community-based, consumer-controlled CILs, and promotes community education throughout the Commonwealth of Virginia. Search websites locations throughout the state.
https://vacil.org

Wilson Workforce and Rehabilitation Center
Provides people with disabilities comprehensive, individualized services to realize personal independence through employment.
Fishersville
800-345-9972
800-811-7893 TTY
www.wwrc.net

Virginia Housing and Supportive Services
As part of Virginia’s commitment to ensure the intent of the American with Disabilities Act (ADA) and the Olmstead decision, the state has launched an intensive community engagement initiative to increase integrated community based housing with supportive services in the communities with the largest number of individuals impacted by the Department of Justice Settlement Agreement.
______Four regional community teams across Virginia are executing local action plans to increase the number of Virginians with ID/DD living in independent integrated community settings.
• The Hampton Roads region is represented by the cities of Chesapeake, Hampton, Newport News, Norfolk, Portsmouth, Suffolk, and Virginia Beach.
(757) 788-0031 • 804-343-5997
• The Richmond region is represented by the cities of Petersburg and Richmond and the counties of Charles City, Chesterfield, Hanover, Henrico, and New Kent.
804-371-2154
•The Northern Virginia region is represented by the cities of Alexandria, Fairfax, Manassas, and Manassas Park and the counties of Arlington, Fairfax, Loudoun, and Prince William.
703-383-8412
https://www.novahss.org

VCU Worksupport
Web portal that highlights VCU’s funded projects on many topics related to the employment of individuals with disabilities
www.worksupport.com

Angel Flight Mid-Atlantic Air Ambulance
Offers free transportation, up to 900 miles, on small privately owned planes for ambulatory patients in medical and financial need.
800-296-3797
757-318-7149
www.angelflightmidatlantic.org

Association for Driver Rehabilitation Specialists
Supports professionals working in the field of driver education and driver training and transportation equipment modifications for persons with disabilities through education and information dissemination.
866-672-9466
www.driver-ed.org

National Patient Travel Center
Provides information about all forms of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network to ensure that no ﬁnancially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical transportation.
Headquarters – Virginia Beach • 800-296-1217
www.PatientTravel.org

TRAVELING

Delta Air Lines
Helpful information for passengers with disabilities.
website

DisabledTravelers.com
Resource dedicated to accessible travel information and provides information about businesses from around the world that specialize in disability travel. A comprehensive listing of accessible travel specialists: Travel Agents, Tour Operators, Adventure Travel Companies, Accessible Cruise Specialists, Accessible Van Rentals & Equipment, Travel Companions, Home Exchanges, and Access Guides for wheelchair users and other disabled travelers.
www.disabledtravelers.com

Travel.State.Gov – A Service of Bureau of Consular Affairs, U.S. Dept of State
Information about planning ahead including a warning that each country has its own standards of accessibility for travelers with disabilities, and many countries do not require accommodations similar to what might be found in the United States.
website

Transportation Security Administration (TSA) Cares Help Line
Assists travelers with disabilities and medical conditions. TSA recommends that passengers call 72 hours ahead of travel for information about what to expect during screening. Travelers may call TSA Cares toll free at 1-855-787-2227 prior to traveling with questions about screening policies, procedures and what to expect at the security checkpoint. TSA Cares will serve as an additional, dedicated resource specifically for passengers with disabilities, medical conditions or other circumstances or their loved ones who want to prepare for the screening process prior to flying. Travelers may also request a Passenger Support Specialist ahead of time by calling the TSA Cares hotline at 1-855-787-2227 or visiting
www.tsa.gov/traveler-information/travelers-disabilities-and-medical-conditions

Travel Accessibility and Tips for Travelers with Disabilities
Informational page on a commercial site
www.titlemax.com/travel-accessibility-and-tips-for-travelers-with-disabilities/

U.S. Dept of Transportion Hotline For Air Travelers With Disabilities
Provides general information to consumers about the rights of air travelers with disabilities, responds to requests for printed consumer information, and assists air travelers with time-sensitive disability-related issues that need to be addressed in “real time.
800-778-4838
800-455-9880 TTY
www.transportation.gov/airconsumer/toll-free-hotline-air-travelers-disabilities

Wheelchair Accessible Travel Guide
Page on TripBuzz (website with information for various types of traveling) that has additional information for wheelchair users.
www.tripbuzz.com/wheelchair-accessible-travel-guide

Celebrating All Abilities

Community Resources

ASTHMA AND ALLERGIES

AUDITORY PROCESSING DISORDER

AUTISM SPECTRUM

BLIND, VISUAL IMPAIRMENT

CANCER

CONDUCT/ BEHAVIOR CONDITIONS

CRANIOFACIAL DISORDERS

DEAF, DEAF/BLIND, HARD OF HEARING

DEVELOPMENTAL DISABILITIES

DOWN SYNDROME

INTELLECTUAL DISABILITIES
See also Developmental Disabilities

JUVENILE DIABETES

LEARNING AND ATTENTION ISSUES

MENTAL HEALTH
Includes information about Emotional Disabilities, Mental Illness, Mental Health and Mood Disorders

NEUROLOGICAL DISORDERS
(See ADHD under Learning and Attention Issues)

NEUROMUSCULAR CONDITIONS

RARE DISORDERS AND GENETIC CONDITIONS

SPEECH AND LANGUAGE CONDITIONS

ADVOCACY AND GENERAL INFORMATION

ASSISTIVE TECHNOLOGY

CHILD CARE

COMMUNITY SERVICE ORGANIZATIONS

EARLY INTERVENTION/EARLY CHILDHOOD/PRESCHOOL

EDUCATIONAL RESOURCES
See also Schools for Individual School listings

EMERGENCY PREPAREDNESS

FINANCIAL AND LIFE PLANNING

HEALTH/MEDICAL

LEGAL

MISCELLANEOUS GROUPS/SERVICES

PARATRANSIT
Editor’s Note: The list of paratransit options in Virginia was too big to list here. To find paratransit options in your county or city, perform an Internet Search with your location and the term PARATRANSIT

RECREATION
See also Camps and Recreation information located at the end of the section.
Be aware that most camps below are not operating or operating virtually during Covid.
As of June, 2022, several camp websites have not been updated. Contact individual camp to verify.

Accessible Playgrounds
www.accessibleplayground.net/united-states/virginia/

RESPITE
Includes information about caregiving
See also Community Service Board information above.
Resources listed under Child Care may also be helpful.

SERVICE AND THERAPY ANIMALS

TRANSITION/ADULTHOOD
Includes information on best practices, employment,
day support and residential options

TRAVELING

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Community Resources

ASTHMA AND ALLERGIES

AUDITORY PROCESSING DISORDER

AUTISM SPECTRUM

BLIND, VISUAL IMPAIRMENT

CANCER

CONDUCT/ BEHAVIOR CONDITIONS

CRANIOFACIAL DISORDERS

DEAF, DEAF/BLIND, HARD OF HEARING

DEVELOPMENTAL DISABILITIES

DOWN SYNDROME

INTELLECTUAL DISABILITIESSee also Developmental Disabilities

JUVENILE DIABETES

LEARNING AND ATTENTION ISSUES

MENTAL HEALTHIncludes information about Emotional Disabilities, Mental Illness, Mental Health and Mood Disorders

NEUROLOGICAL DISORDERS(See ADHD under Learning and Attention Issues)

NEUROMUSCULAR CONDITIONS

RARE DISORDERS AND GENETIC CONDITIONS

SPEECH AND LANGUAGE CONDITIONS

ADVOCACY AND GENERAL INFORMATION

ASSISTIVE TECHNOLOGY

CHILD CARE

COMMUNITY SERVICE ORGANIZATIONS

EARLY INTERVENTION/EARLY CHILDHOOD/PRESCHOOL

EDUCATIONAL RESOURCESSee also Schools for Individual School listings

EMERGENCY PREPAREDNESS

FINANCIAL AND LIFE PLANNING

HEALTH/MEDICAL

LEGAL

MISCELLANEOUS GROUPS/SERVICES

PARATRANSITEditor’s Note: The list of paratransit options in Virginia was too big to list here. To find paratransit options in your county or city, perform an Internet Search with your location and the term PARATRANSIT

RECREATIONSee also Camps and Recreation information located at the end of the section.Be aware that most camps below are not operating or operating virtually during Covid. As of June, 2022, several camp websites have not been updated. Contact individual camp to verify.

Accessible Playgroundswww.accessibleplayground.net/united-states/virginia/

RESPITEIncludes information about caregivingSee also Community Service Board information above. Resources listed under Child Care may also be helpful.

SERVICE AND THERAPY ANIMALS

TRANSITION/ADULTHOODIncludes information on best practices, employment, day support and residential options

TRAVELING

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INTELLECTUAL DISABILITIES
See also Developmental Disabilities

MENTAL HEALTH
Includes information about Emotional Disabilities, Mental Illness, Mental Health and Mood Disorders

NEUROLOGICAL DISORDERS
(See ADHD under Learning and Attention Issues)

EDUCATIONAL RESOURCES
See also Schools for Individual School listings

PARATRANSIT
Editor’s Note: The list of paratransit options in Virginia was too big to list here. To find paratransit options in your county or city, perform an Internet Search with your location and the term PARATRANSIT

RECREATION
See also Camps and Recreation information located at the end of the section.
Be aware that most camps below are not operating or operating virtually during Covid.
As of June, 2022, several camp websites have not been updated. Contact individual camp to verify.

Accessible Playgrounds
www.accessibleplayground.net/united-states/virginia/

RESPITE
Includes information about caregiving
See also Community Service Board information above.
Resources listed under Child Care may also be helpful.

TRANSITION/ADULTHOOD
Includes information on best practices, employment,
day support and residential options